The Project
My blogs
| Industry | Non-Profit |
|---|---|
| Occupation | Founder/CEO |
| Location | Laguna Woods, CA, United States |
| Introduction | The Project will create an online community where children with rare diseases, their families, and the organizations that support them will have the opportunity to communicate, collaborate, become educated and tap existing resources, helping them with their daily challenges. Introducing - The Children’s Rare Disease Network Children and their families need information, resources and a coherent voice to speak to issues common to people who suffer from a rare disease. The Network will seek to work collaboratively with other organizations and raise the profile of the problems faced by people with rare diseases so that more funding can be directed into this area of great need. The Network will work with skilled journalists to build and establish a central website with focused content about research, policy and other developments around rare disease initiatives for individuals and the organizations that support them. The Network will serve as an online home for people with rare diseases that will bring together families, organizations, physician & researchers to exchange information and help each other. |
| Interests | Art, Education, Making a Difference |