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About me

Introduction Hi my name is Brayce and I started this blog to help spread awareness about EB. Our daughter Brystal was born with rDEB and is in pain all the time. We have to do bandage changes once a day or every other day. There is currently no cure for this horrible disorder and we have no known family members with EB. Hopefully they find a cure or something to help out these poor little ones. Having a child in cronic pain is devistating!