Susan Q.Knittle-Hunter

My blogs

About me

Industry Education
Occupation Retired Special Education Teacher
Location Sequim, Washington, United States
Links Audio Clip
Introduction I have a variant of a very rare and debilitating hereditary disease called Periodic Paralysis. For years I was misdiagnosed and mistreated and am now in a power wheelchair, on oxygen therapy 24/7 and severely disabled. I was not diagnosed until the age of 62, 5 years ago. I have degrees in Psychology and Special Education from the University of Utah and had to give up my careers as a teacher and case manager working with children and adults with disabilities. My husband and I are co-founders of an independent organization, the Periodic Paralysis Network. We have a website with a forum containing 5 distinct discussion/support groups and we have written and published the only books written about it. Our focus is on educational resources to build self-reliance and self-empowerment. Our approach to treatment focuses on the self-monitoring of vitals and the management of symptoms through natural methods. I spend my days researching, writing and offering support and education to others with Periodic Paralysis.
Interests Spending time in the Forest, Genealogy, Writing, Computer Games, Slot Machines, Traveling, Knitting, Reading, Family, Alternative Spirituality, The Paranormal
Favorite Movies Thrillers, Paranormal, Anything to do with Christmas
Favorite Music Soft Rock, John Denver, Christmas
Favorite Books Medieval Hisorical Romance Novels, The Paranormal and Parapsychology