Just Another Ordinary Miracle

My blogs

Blogs I follow

About me

Introduction In April of 2006 I came into this world with lots of surprises in store for my family. I was born with a genetic disorder that is so rare it does not have a name. There is a deletion in my 21st chromosome. Because of this, I am deafblind. I have bilateral anophthalmia (no eyes) and hearing loss. My cleft lip and palate have been repaired. I was trached, but that has been removed. Over the years I have had many surgeries. I also have seizures. Despite my medical trivia, I am living one amazing Life. I have lots of love from my family and friends. I'm really a go getter. My mom says I'm a little defiant and go completely around anything "typical". I do my own thing in my own time. I go to a great school with amazing teachers. I am learning sign language and how to navigate my world. And, I have two amazing brothers! This blog is my family's story and a glimpse of the joys and tears of life's ordinary miracles.
Favorite Music Wheels on the Bus, Itsy Bitsy Spider, Pat-a-Cake, This Little Piggy
Favorite Books 5 Little Monkeys Jumping on the Bed