Shelly Moore (oregonmarfan)

Blogs I follow

About me

Industry Technology
Occupation Tech Support
Location Oregon, United States
Introduction In 1994, my husband Daniel was diagnosed with Marfan Syndrome, one year after we were married. After many twists and turns of odd symptoms and a misdiagnosis of a related condition, I and several children from an earlier marriage were also diagnosed with Marfan's in the fall of 2011. The odds of having Marfan's is 1 in 5,000. The odds of TWO undiagnosed Marf's meeting & marrying is 1 in who knows how many... Yet, we found each other!! As we adjust to the diagnosis, our lives are now changed and will be taking a new direction. Follow us along as we see where this uncharted path takes us...
Favorite Movies Star Wars, Star Trek, MIB, Independence Day, Armageddon
Favorite Music Pop, Jazz, Christian
Favorite Books Dave Ramsey's Total Money Makeover