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Occupation Stay-at-Home Mom
Location United States
Introduction On Friday, August 20th, when Ethan was just 28 days old, he was diagnosed with a Peroxisomal Biogenesis Disorder- Zellweger Spectrum Disorder (PBD-ZSD). These are really horrible nasty disorders. The geneticist believes that Ethan’s is at the moderate/mild side of the PBD-ZSD spectrum – but there isn't anyway to really tell where Ethan's PBD-ZSD journey is taking us. Both of Ethan's gene mutations have been found, but even this can't tell us exactly what Ethan's life will be like. Only the Lord knows what the future holds for our little man.
Interests The Global Foundation for Peroxisomal Disorders -