Shannon

My blogs

About me

Location Washington, DC, United States
Introduction What can we say...boy meets girl. We fall in love. Marry. 2 kids. We had the wonderful experience of living in London. Then, in the spring of 2008 both of our kids were diagnosed with MPS III A, otherwise known as Sanfilippo Syndrome. It is a fatal genetic disorder. We moved back to the US in summer 2008. We now call DC home. We try to fill our days enjoying the little things and making memories. This is our journey.