Tracheal Stenosis Sucks

My blogs

About me

Gender FEMALE
Industry Non-Profit
Occupation Mental Health Advocate
Location London, United Kingdom
Introduction I have Subglottic Tracheal Stenosis, and tracheomalacia. After 14 years of fighting TS, I have been told that my trachea is completely necrosed and my only hope for a long term existence is a tissue engineered tracheal transplant. Except thus far, the Department of Health in London have not approved this as a procedure, so although they can do it, they're not allowed. Very annoying. I also suffer from the painful and debilitating spinal conditions lumbar spondylosis, facet hypertrophy and sacroiliitis. And the absolute icing on the cake is that I have Bipolar Affective Disorder type 1. Which makes me crazy some days, hahaha. I love music, my baby cats, and crochet. So if anyone wants a handmade crochet hat for the winter, I am open to offers!! hehehe I also enjoy ballet, classical music, heavy rock, art and theatre, but I try and keep that side of me quiet. People don't like it if you come across as too intellectual. Not where I live, anyway. I really hope you enjoy reading my adventures. I'm just blithering about the joys of chronic illness really, but other things creep in too. Take care, peace to all!!
Interests Music, playing guitar, mental health, film, Vincent D'Onofrio lol, Extreme, Nuno Bettencourt, Health, Wealth, Happiness...
Favorite Movies Stealing Beauty, Twilight Saga, Harry Potter (yeah, I know, sad...), A Beautiful Mind, Gremlins lol.
Favorite Music Nuno Bettencourt, Tribe of Judah, Sisters of Mercy, Aerosmith, Poison, Warrant, Maroon 5, Daughtry, Ricky Martin, Mana, Extreme, Dramagods, Population 1.
Favorite Books Prozac Nation by Elizabeth Wurtzel, Sophie's World by Jostein Gaarder, Dice Man by Lucius Reinherdt (pardon spellings...)

They told me I was insane. I told them I was sane. Damn them, they outnumbered me!