She's not heavy...she's my Sister

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Gender Female
Location FLORIDA
Introduction QUICK FACTS:Frontotemporal degeneration (FTD, is a disease process that causes changes in behavior and personality, language and/or motor skills, and a deterioration in a person’s ability to function. FTD is distinct from other forms of dementia in two important ways: • Onset of FTD often occurs in the 50s and 60s; the average age of diagnosis is about 60, which is a full 10 years before the average Alzheimer patient is diagnosed. Thus, FTD can affect work and family in a way dementia in older patients does not. • The hallmark of FTD is a gradual, progressive decline in behavior and/or language (rather than memory). As the disease progresses, these deficits cause significant impairment in social and/ or occupational functioning and result in an increasing dependency on caregivers. FTD affects an estimated 50,000 Americans. Currently, there are no treatments to slow or stop the progression of FTD. However, research is advancing and initial clinical trials are underway. The course of the disease ranges from 2 to as long as 18 years with an average of 8 years from the onset of symptoms.