fshfriends

My blogs

About me

Gender FEMALE
Industry Non-Profit
Occupation Registered Nurse
Location Kirkland, Washington, United States
Introduction Mother of 4 children, one of which has Facioscapulohumeral Muscular Dystrophy, or FSH. Our family founded Pacific Northwest Friends of FSH Research in 2004 in order to help fund FSH research.
Interests Exploring new ways to raise the public's awareness of Facioscapulohumeral Muscular Dystrophy & to raise the funds necessary to stimulate & support new FSHD research.