fshfriends
My blogs
| Gender | FEMALE |
|---|---|
| Industry | Non-Profit |
| Occupation | Registered Nurse |
| Location | Kirkland, Washington, United States |
| Introduction | Mother of 4 children, one of which has Facioscapulohumeral Muscular Dystrophy, or FSH. Our family founded Pacific Northwest Friends of FSH Research in 2004 in order to help fund FSH research. |
| Interests | Exploring new ways to raise the public's awareness of Facioscapulohumeral Muscular Dystrophy & to raise the funds necessary to stimulate & support new FSHD research. |