Here’s a quick update on Seth and his “stuff.” But first, here is a quick overview of his health background. Seth has hypo-plastic optic nerves. Basically, that means his optic nerves are dull and grey, kind of dead like. They are not bright pink like yours or mine. That means, he does not see well. Poorly, in fact. He is severely near-sighted. It is not an eye thing, it is a brain thing. He also has nystagmus, which means his eyes are in a constant state of moving, although that has improved, a astigmatism in his left eye, and pretty bad crossing, pre-surgery last fall. Because of the hypo-nerves, there are often other brain issues that join in. Like septo-optic dysplasia. With SOD, you can see pituitary issues and other developmental delays. So……

Seth had an MRI last summer. Looks mostly good. We saw a Neurologist a few times until he said we are done unless or until Seth has a seizure (another thing with SOD). Seth gets four therapies a week for his developmental delays. And, we see an Endocrinologist to monitor his hormone levels – which are regulated by the pituitary gland. At our last endocrine appointment, one of Seth’s levels was a little high, and he’s huge, by the way, so the doctor was a bit concerned that his Human Growth Hormone might be going crazy. Oy. I never push back on Seth’s doctors. But when the nurse called this time about another blood test, I was not happy. I pushed back big time. She explained it to me and eventually I told her it would have to wait until after I went to Uganda.

The first week I was back, I thought of it, but I wasn’t interested in forcing Seth to a doctor too soon after I got home. Week two, well, I just didn’t want to. So, on week three, I asked Eveline to stop by Children’s Memorial to give some blood and get it done. Thursday, the doctor’s office called and said all of his blood is NORMAL, NORMAL, NORMAL!!! I knew it. Thank you, Jesus! It’s a blast to watch God heal Seth, one blood test, word spoken, and friend at a time. AMEN.