Yay!! that is awesome, Maggie and Eden can be flying around in no time together, while Michael and Holland figure out how to "hitch" a ride. Now on the the quest of getting the van!!! We are so happy for you guys.
So glad they approved the wheelchair. The news about Eden is great. That is so exciting. It is good to look past the numbers and celebrate your child and her progress, it is a hard thing to do sometimes. I still have in my head that my 3 1/2 yr old has gross motor skills of a 1yr 8mth old and yet he is only given 30 mins a month of physical therapy. Happy for you guys and can't wait to see pics of Eden in her new chair.
Awesome news Billie!! You certainly do have extraordinary girls and the whole world knows it. I'm glad that 2 yr results came back so well for her too.
Billie - I am so happy ! Go Eden!!! That is great news and I am sure great to get great news!!!
Also, I added a badge on my side bar supporting Team Holland and Eden! I wish we could come out and march with you but all we can do is send some money from afar at this point! It's great what you are doing for the March of Dimes and the research into prematurity - great montage as well.
Congratulations on the great news! I am so glad I stumbled upon your blog. My boys are only 18 months but we have almost the same story. Your family is inspiring.
Wed Apr 09, 01:47:00 AM EDT
"We have reviewed a request to reconsider the decision not to authorize the above service. We are pleased to inform you that (medical insurance) has reversed the original decision not to authorize services."
In other words, we have approval for power wheels!!!!!!!!!!! Yippee!!!!!!!
I take back everything negative I said about them. Weelllll okay...maybe not everything:)
I also got a report in the mail today from Eden's speech and language evaluation, done 2 years post cochlear implant, at the center where she got her implant. The scores themselves are somewhat hard to swallow, especially since I am a school psychologist and standard scores are what I do. The thing is, ALL the tests are normed on kids with no hearing loss or physical limitations. I KNOW this logically, but still...she's significantly below average in terms of scores. On the very bright side, the report summarized the examiners impressions like this:
"Eden is successfully using her cochlear implant to develop spoken language. Her progress continues to be steady. The effects of cerebral palsy impact her breath support for speech; however, marked gains have been made in this area. Eden's performance is in keeping with what this center typically sees from a good cochlear implant user 24 months after activation when no disability is present."
Did you catch that? Her performance is TYPICAL for GOOD CI users 2-years post implant. I am so proud. Clearly, she is brilliant, and beautiful to boot.
"Good News All Around!"
18 Comments -
Yeah! WooHoo! Hurray! and any other exciting interjection you can think of
Thu Apr 03, 08:35:00 PM EDT
Clearly she is a spectacular child. That's wonderful news.
Thu Apr 03, 08:55:00 PM EDT
WONDERFUL news! And I agree, you have 2 gorgeous girls!
Thu Apr 03, 10:21:00 PM EDT
Yay!! that is awesome, Maggie and Eden can be flying around in no time together, while Michael and Holland figure out how to "hitch" a ride. Now on the the quest of getting the van!!! We are so happy for you guys.
Thu Apr 03, 10:27:00 PM EDT
Congrats! On all counts.
Thu Apr 03, 11:53:00 PM EDT
Woo Hoo! Wheels!! How exciting. Ben is gonna flip when he sees her with her new wheels.
And-Your girls are just beautiful!
Fri Apr 04, 12:39:00 AM EDT
Congratulations! News worthy of a huge celebration!!!
Fri Apr 04, 07:56:00 AM EDT
WOO HOO! GREAT NEWS!TGIF!
Fri Apr 04, 09:08:00 AM EDT
So glad they approved the wheelchair. The news about Eden is great. That is so exciting. It is good to look past the numbers and celebrate your child and her progress, it is a hard thing to do sometimes. I still have in my head that my 3 1/2 yr old has gross motor skills of a 1yr 8mth old and yet he is only given 30 mins a month of physical therapy. Happy for you guys and can't wait to see pics of Eden in her new chair.
Fri Apr 04, 12:54:00 PM EDT
Whooop! Good news all around!
Moniqeu in TX
Fri Apr 04, 03:21:00 PM EDT
Billie,
That is great about the power wheels!!!!!! Wahoo!
Fri Apr 04, 07:37:00 PM EDT
Awesome news Billie!! You certainly do have extraordinary girls and the whole world knows it. I'm glad that 2 yr results came back so well for her too.
I love posts like these :)
Sat Apr 05, 08:47:00 PM EDT
Great news on all fronts! I'm sure Eden will take to power wheels like a duck to water.
Sun Apr 06, 04:02:00 PM EDT
I would do a cartwheel for you if I had ever learned how...
Sun Apr 06, 09:27:00 PM EDT
Billie - I am so happy ! Go Eden!!! That is great news and I am sure great to get great news!!!
Also, I added a badge on my side bar supporting Team Holland and Eden! I wish we could come out and march with you but all we can do is send some money from afar at this point! It's great what you are doing for the March of Dimes and the research into prematurity - great montage as well.
Mon Apr 07, 08:32:00 PM EDT
Thank you Kathryn! That is so awesome. Thank you so much for supporting our efforts!
Mon Apr 07, 10:54:00 PM EDT
What great news! So thrilled that they covered her chair:)
Wed Apr 09, 01:42:00 AM EDT
Congratulations on the great news! I am so glad I stumbled upon your blog. My boys are only 18 months but we have almost the same story. Your family is inspiring.
Wed Apr 09, 01:47:00 AM EDT