What beautiful girls! I'm so glad I "accidentally" came across your blog. My twins were born at 27 weeks and your story was so, very familiar. My boys were born in February 2004. Charlie was 2lbs 5ozs and Matthew was a whopping 3lbs 1oz. Matthew is doing beautifully, meeting all of his developmental milestone (walking, etc). Charlie, on the other hand, suffered a Grade 4 IVH and subsequent PVL and Hydrocephalus. To make matters worse, he has a condition known as saggital cranialsynostosis (his skull sutures prematurely closed). Needless to say, he has had several surgeries. The last of which was a complete cranial reconstruction in January 2005. Please e-mail me if you want to swap stories. It's not that often that I find someone that has a story so similar to ours. Your babies are wonderful, little miracles.
Mon Sep 19, 04:30:00 PM EDT
Anonymous said...
OOOOHHHHH the girlies look like they are ready to go hang with Aunt Lisa on Rodeo Drive! Smooches! Mamma Jules
I've already posted a comment on this post, but I realized that I didn't give you my son's web site address, it is wwww.littlecharlierocks.com. It is more specific to Charlie's situation, but I thought you would find it interesting. Of course, we have our family blog so you can check us out there too....
"Our Future's So Bright..."
8 Comments -
ahhh! too cute! my little rock stars. they are all ready for a visit to hollywood...
love you,
lisa
Sun Sep 18, 10:37:00 PM EDT
What cuties. Love the one of Holland looking out of the top she looks like a cool chic.
Sun Sep 18, 11:03:00 PM EDT
Billie-
These pictures of Holland and Eden are adorable. It's the love that you and John give to the girls that make their future bright.
Emily
Sun Sep 18, 11:04:00 PM EDT
What beautiful girls! I'm so glad I "accidentally" came across your blog. My twins were born at 27 weeks and your story was so, very familiar. My boys were born in February 2004. Charlie was 2lbs 5ozs and Matthew was a whopping 3lbs 1oz. Matthew is doing beautifully, meeting all of his developmental milestone (walking, etc). Charlie, on the other hand, suffered a Grade 4 IVH and subsequent PVL and Hydrocephalus. To make matters worse, he has a condition known as saggital cranialsynostosis (his skull sutures prematurely closed). Needless to say, he has had several surgeries. The last of which was a complete cranial reconstruction in January 2005. Please e-mail me if you want to swap stories. It's not that often that I find someone that has a story so similar to ours. Your babies are wonderful, little miracles.
Mon Sep 19, 04:30:00 PM EDT
OOOOHHHHH the girlies look like they are ready to go hang with Aunt Lisa on Rodeo Drive!
Smooches!
Mamma Jules
Mon Sep 19, 06:47:00 PM EDT
Oh aren't they precious! I love babies in sunglasses...they look so happy. :)
Kiss them for me.
Tue Sep 20, 10:55:00 AM EDT
Eden's little spike fits well! They are both so cute. Good luck when you're outdoors! Hugs, donna
Tue Sep 20, 01:11:00 PM EDT
I've already posted a comment on this post, but I realized that I didn't give you my son's web site address, it is wwww.littlecharlierocks.com. It is more specific to Charlie's situation, but I thought you would find it interesting. Of course, we have our family blog so you can check us out there too....
Wed Sep 21, 04:03:00 PM EDT