Synaptic Jen
My blogs
Blogs I follow
- BEAT DYSTONIA (501)(c)(3)
- Deceptively Unreal
- Dystonia's Secret
- JS-Kit
- Kaden's Battle with Leigh Syndrome
- MyJourney
- Sensus Communis
- Shari's Ramblings - A Dystonia Diary
- Spazmic Confessions: to help let go of Dystonia
| Gender | Female |
|---|---|
| Industry | Student |
| Occupation | graduate researcher |
| Location | Indiana, United States |
| Introduction | I'm a determined woman, not willing to let chronic illness illness take away the joy of living. I am a wife, mommy and graduate student working on a PhD in Neuroscience and Psychology. I have mitochondrial disease that has caused generalized dystonia with dystonic attacks, dysautonomia, tachycardia, severe gastroparesis & bowel dysmotility (TPN dependency), fibromyalgia, muscle weakness and pain, peripheral neuropathy, fatigue, intermittent ptosis, strabismus and migraines. Life is not easy but I'm doing the best I can to live in the moment and find happiness in the small joys of life. In addition to grinding away at my dissertation, I particularly enjoy playing the roles of wife and Mommy. My son brings me daily joy and I enjoy sharing about his experiences and discoveries. |
| Interests | neuroscience, buddhism, disability, mitochondrial disease, dystonia, deep brain stimulation, health care, service dogs, rehabilitation, neurology, photography, gardening, hiking, climbing, kayaking, parenting |
| Favorite Movies | Steel Magnolias, Patch Adams, Indiana Jones, The Doctor, The Wedding Gift, The Witt, Star Wars, Moulin Rouge, Pay It Forward, Marley and Me, Phenomenon |
| Favorite Music | Enya, REM, Indigo Girls, Fleetwood Mac, Tori Amos, The Beatles, Dixie Chicks, Natalie Merchant, Barenaked Ladies, Toad the Wet Sprocket, U2 |
| Favorite Books | Oliver Sacks, Stephen Jay Gould, A.R. Luria, Thich Nhat Hanh, A Beautiful Mind, The Monk and the Philosopher, Autobiographies of people with disabilities |