<?xml version='1.0' encoding='UTF-8'?><?xml-stylesheet href="http://www.blogger.com/styles/atom.css" type="text/css"?><feed xmlns='http://www.w3.org/2005/Atom' xmlns:openSearch='http://a9.com/-/spec/opensearchrss/1.0/' xmlns:georss='http://www.georss.org/georss'><id>tag:blogger.com,1999:blog-9058393457828907173</id><updated>2009-11-09T21:27:58.237-08:00</updated><title type='text'>Con Santo y Seña</title><subtitle type='html'></subtitle><link rel='http://schemas.google.com/g/2005#feed' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/posts/default'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/'/><link rel='hub' href='http://pubsubhubbub.appspot.com/'/><link rel='next' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default?start-index=26&amp;max-results=25'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email></author><generator version='7.00' uri='http://www.blogger.com'>Blogger</generator><openSearch:totalResults>34</openSearch:totalResults><openSearch:startIndex>1</openSearch:startIndex><openSearch:itemsPerPage>25</openSearch:itemsPerPage><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-1739461124167774044</id><published>2008-06-25T13:23:00.000-07:00</published><updated>2008-06-25T15:33:41.905-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='the beach'/><category scheme='http://www.blogger.com/atom/ns#' term='special needs'/><category scheme='http://www.blogger.com/atom/ns#' term='Sidrome Cornelia de Lange'/><category scheme='http://www.blogger.com/atom/ns#' term='family outing'/><category scheme='http://www.blogger.com/atom/ns#' term='CdLS'/><title type='text'>The beach: friend or foe?</title><content type='html'>&lt;img id="BLOGGER_PHOTO_ID_5215920106342203666" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/SGKrs5tYQRI/AAAAAAAAAfM/e1Ni5mP2aco/s400/joanuniversal+098.jpg" border="0" /&gt;&lt;br /&gt;&lt;strong&gt;&lt;span style="font-family:arial;"&gt;Here in Southern Ca the beach is a pretty big deal. Everyone is just waiting for the weather to cooperate to flock the beaches. So it’s amazing that last Sunday was Natalia’s first day at the beach.  This was the first time that the weather was beach worthy and Natalia was 100% healthy.  It really wasn’t planned, we went for brunch to Candela’s in Coronado Bay, which has gorgeous views of the San Diego skyline and bay…and spur of the moment we just thought we’d go for it. We didn't know what to expect.&lt;img id="BLOGGER_PHOTO_ID_5215920132163425778" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/SGKruZ5o1fI/AAAAAAAAAfU/lhyX6LO98_4/s400/joanuniversal+092.jpg" border="0" /&gt;At first we let her feel the sand and then walk on it, she didn’t seem to like it much at first but warmed up to it pretty well. After a while of playing in the sand we decided to walk to the shore.&lt;br /&gt;&lt;img id="BLOGGER_PHOTO_ID_5215932840884331026" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/SGK3SJk0YhI/AAAAAAAAAfk/JfvB52njkcc/s400/joanuniversal+095.jpg" border="0" /&gt;&lt;br /&gt;Uh oh! That was a real shocker for Natalia! She tried to take it all in and just as she was getting her head around the idea of the sea a tiny ripple of wave came up and wet her tiny feet. It was cold. Pandemonium broke loose and she wanted out NOW!&lt;br /&gt;&lt;br /&gt;We left in a hurry… but we’ll be back soon to try again. &lt;/span&gt;&lt;/strong&gt;&lt;br /&gt;&lt;object width="320" height="266" class="BLOG_video_class" id="BLOG_video-88e9fb7f1a899c43" classid="clsid:D27CDB6E-AE6D-11cf-96B8-444553540000" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=6,0,40,0"&gt;&lt;param name="movie" value="http://www.blogger.com/img/videoplayer.swf?videoUrl=http%3A%2F%2Fvp.video.google.com%2Fvideodownload%3Fversion%3D0%26secureurl%3DqAAAADbdx0ctBZ6r0jjgHMEoxaajObp26Bn60kCInDu-jAWg-lqQN-avFWlGBToC1LcwEEMb0IksOTgwRGbtllx_1PBDIRs8_dAOXkvrJbOnpSd9uaM84IrA6-Lr0eWgcsxBtfrVFDZ_Fwy827dgkACWy1I2c4w8qUW97IU0toISyLRT1Mg-7Ff7wkUXMy6_4Z6Lye7xVE_dDGNd6ZLmUeLXsKBH5BJlIv1erhblwSrUR9RR%26sigh%3DnKgPZBSfrFy_ln9MMqcmnqO8QME%26begin%3D0%26len%3D86400000%26docid%3D0&amp;amp;nogvlm=1&amp;amp;thumbnailUrl=http%3A%2F%2Fvideo.google.com%2FThumbnailServer2%3Fapp%3Dblogger%26contentid%3D88e9fb7f1a899c43%26offsetms%3D5000%26itag%3Dw320%26sigh%3DSTR9Biw5Y7EqSOGsP5mx_z5g3po&amp;amp;messagesUrl=video.google.com%2FFlashUiStrings.xlb%3Fframe%3Dflashstrings%26hl%3Den"&gt;&lt;param name="bgcolor" value="#FFFFFF"&gt;&lt;embed width="320" height="266" src="http://www.blogger.com/img/videoplayer.swf?videoUrl=http%3A%2F%2Fvp.video.google.com%2Fvideodownload%3Fversion%3D0%26secureurl%3DqAAAADbdx0ctBZ6r0jjgHMEoxaajObp26Bn60kCInDu-jAWg-lqQN-avFWlGBToC1LcwEEMb0IksOTgwRGbtllx_1PBDIRs8_dAOXkvrJbOnpSd9uaM84IrA6-Lr0eWgcsxBtfrVFDZ_Fwy827dgkACWy1I2c4w8qUW97IU0toISyLRT1Mg-7Ff7wkUXMy6_4Z6Lye7xVE_dDGNd6ZLmUeLXsKBH5BJlIv1erhblwSrUR9RR%26sigh%3DnKgPZBSfrFy_ln9MMqcmnqO8QME%26begin%3D0%26len%3D86400000%26docid%3D0&amp;amp;nogvlm=1&amp;amp;thumbnailUrl=http%3A%2F%2Fvideo.google.com%2FThumbnailServer2%3Fapp%3Dblogger%26contentid%3D88e9fb7f1a899c43%26offsetms%3D5000%26itag%3Dw320%26sigh%3DSTR9Biw5Y7EqSOGsP5mx_z5g3po&amp;amp;messagesUrl=video.google.com%2FFlashUiStrings.xlb%3Fframe%3Dflashstrings%26hl%3Den" type="application/x-shockwave-flash"&gt;&lt;/embed&gt;&lt;/object&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-1739461124167774044?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='enclosure' type='video/mp4' href='http://www.blogger.com/video-play.mp4?contentId=88e9fb7f1a899c43&amp;type=video%2Fmp4' length='0'/><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/1739461124167774044/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=1739461124167774044' title='8 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/1739461124167774044'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/1739461124167774044'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/06/beach-friend-or-foe.html' title='The beach: friend or foe?'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/_le43ukemYmw/SGKrs5tYQRI/AAAAAAAAAfM/e1Ni5mP2aco/s72-c/joanuniversal+098.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>8</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-7814676787696412236</id><published>2008-06-19T17:08:00.000-07:00</published><updated>2008-06-19T17:37:07.639-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='special needs'/><category scheme='http://www.blogger.com/atom/ns#' term='goofing around'/><category scheme='http://www.blogger.com/atom/ns#' term='Cornelia de Lange'/><category scheme='http://www.blogger.com/atom/ns#' term='random facts'/><category scheme='http://www.blogger.com/atom/ns#' term='CdLS'/><title type='text'>A few of her favorite things</title><content type='html'>&lt;div&gt;Natlaia's likes and dislikes are constantly changing... she has no trouble letting us know what she's into. Right now she L O V E S:&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;br /&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;Chewing anything she gets her hands on&lt;br /&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;a href="http://1.bp.blogspot.com/_le43ukemYmw/SFr3C_Q9rVI/AAAAAAAAAes/l56Aa6wzqV4/s1600-h/june+074.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5213751149349154130" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/SFr3C_Q9rVI/AAAAAAAAAes/l56Aa6wzqV4/s400/june+074.jpg" border="0" /&gt;&lt;/a&gt;&lt;br /&gt;Pulling curtains&lt;br /&gt;&lt;a href="http://3.bp.blogspot.com/_le43ukemYmw/SFr2V36rnKI/AAAAAAAAAeE/QCY_th_rl4M/s1600-h/june+010.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5213750374282534050" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/SFr2V36rnKI/AAAAAAAAAeE/QCY_th_rl4M/s400/june+010.jpg" border="0" /&gt;&lt;/a&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;This combo: one hand on temple and one in mouth&lt;br /&gt;&lt;a href="http://3.bp.blogspot.com/_le43ukemYmw/SFr2WFrK2eI/AAAAAAAAAeM/Q4LJKupgYtE/s1600-h/june+014.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5213750377975568866" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/SFr2WFrK2eI/AAAAAAAAAeM/Q4LJKupgYtE/s400/june+014.jpg" border="0" /&gt;&lt;/a&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;Exploring her surroundings&lt;br /&gt;&lt;/div&gt;&lt;br /&gt;&lt;p&gt;&lt;a href="http://1.bp.blogspot.com/_le43ukemYmw/SFr2WRj_XcI/AAAAAAAAAeU/KeURV7F8riA/s1600-h/june+019.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5213750381166681538" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/SFr2WRj_XcI/AAAAAAAAAeU/KeURV7F8riA/s400/june+019.jpg" border="0" /&gt;&lt;/a&gt;&lt;/p&gt;&lt;br /&gt;&lt;p&gt;&lt;/p&gt;&lt;br /&gt;&lt;p align="center"&gt;Standing independantly (or trying to)&lt;br /&gt;&lt;/p&gt;&lt;br /&gt;&lt;p&gt;&lt;a href="http://1.bp.blogspot.com/_le43ukemYmw/SFr2WqrOUUI/AAAAAAAAAec/r1iNqdDvOOQ/s1600-h/june+024.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5213750387907907906" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/SFr2WqrOUUI/AAAAAAAAAec/r1iNqdDvOOQ/s400/june+024.jpg" border="0" /&gt;&lt;/a&gt; &lt;/p&gt;&lt;br /&gt;&lt;p align="center"&gt;Blowing rasberries&lt;a href="http://1.bp.blogspot.com/_le43ukemYmw/SFr2Wm3K0SI/AAAAAAAAAek/I7DR1VpHSiQ/s1600-h/june+043.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5213750386884268322" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/SFr2Wm3K0SI/AAAAAAAAAek/I7DR1VpHSiQ/s400/june+043.jpg" border="0" /&gt;&lt;/a&gt;&lt;br /&gt;Her #1 Favorite ??? &lt;/p&gt;&lt;br /&gt;&lt;p align="center"&gt;&lt;br /&gt;HER DADDY!!!!&lt;br /&gt;&lt;/p&gt;&lt;img id="BLOGGER_PHOTO_ID_5213755937559615618" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/SFr7ZsvTGII/AAAAAAAAAfE/nrCyeNAo2Tw/s400/june+130.jpg" border="0" /&gt;&lt;br /&gt;&lt;div&gt;&lt;img id="BLOGGER_PHOTO_ID_5213751153266544658" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/SFr3DN28UBI/AAAAAAAAAe0/0RYEBIrW3MY/s400/june+117.jpg" border="0" /&gt;&lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-7814676787696412236?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/7814676787696412236/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=7814676787696412236' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/7814676787696412236'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/7814676787696412236'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/06/few-of-her-favorite-things.html' title='A few of her favorite things'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://1.bp.blogspot.com/_le43ukemYmw/SFr3C_Q9rVI/AAAAAAAAAes/l56Aa6wzqV4/s72-c/june+074.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-8793215227394483033</id><published>2008-06-11T00:01:00.000-07:00</published><updated>2008-06-11T01:52:45.704-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='special needs'/><category scheme='http://www.blogger.com/atom/ns#' term='Sidrome Cornelia de Lange'/><category scheme='http://www.blogger.com/atom/ns#' term='goofing around'/><category scheme='http://www.blogger.com/atom/ns#' term='Cornelia de Lange'/><category scheme='http://www.blogger.com/atom/ns#' term='family outing'/><category scheme='http://www.blogger.com/atom/ns#' term='CdLS'/><title type='text'>Family Outing</title><content type='html'>&lt;img id="BLOGGER_PHOTO_ID_5210519587977862690" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/SE979XCiniI/AAAAAAAAAdU/ixg23LBCbAQ/s400/joanuniversal+161.jpg" border="0" /&gt; We had a great weekend. We took Natalia to &lt;a href="http://www.balboapark.org/"&gt;Balboa Park &lt;/a&gt;“the nation’s largest urban cultural park”, this park is amazing and it brings back fun childhood memories for me.&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;We took along Naty´s walker so she could walk around freely in a large area. She took to that instantly and walked all around a huge fountain, stopping here and there to observe the other people around who were equally curious at the peanut in the walker.&lt;br /&gt;&lt;img id="BLOGGER_PHOTO_ID_5210519580568095298" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/SE9787b6ikI/AAAAAAAAAdM/vY2NUHthtwM/s400/joanuniversal+156.jpg" border="0" /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;I asked someone to take this picture, Í'm rarely in any photo since I'm always the one taking them...&lt;br /&gt;&lt;a href="http://3.bp.blogspot.com/_le43ukemYmw/SE97-NBFhcI/AAAAAAAAAdc/_2cUpmOzVYo/s1600-h/joanuniversal+173.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5210519602467276226" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/SE97-NBFhcI/AAAAAAAAAdc/_2cUpmOzVYo/s400/joanuniversal+173.jpg" border="0" /&gt;&lt;/a&gt; Here's another one. You can´t really see but there are some beautiful water lilies in the pond&lt;br /&gt;&lt;a href="http://1.bp.blogspot.com/_le43ukemYmw/SE97-dTO7CI/AAAAAAAAAdk/ZscbPIwoEto/s1600-h/joanuniversal+185.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5210519606838357026" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/SE97-dTO7CI/AAAAAAAAAdk/ZscbPIwoEto/s400/joanuniversal+185.jpg" border="0" /&gt;&lt;/a&gt; It was a gorgeous sunny day so we got her these cool shades... which she didn't like very much. Oh well, another 6 bucks down the drain. We had to hold her arms to take this.&lt;img id="BLOGGER_PHOTO_ID_5210520507249212354" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/SE98y3l6O8I/AAAAAAAAAd0/saAB9mGzfHs/s400/joanuniversal+184.jpg" border="0" /&gt;When Natalia was all pooped out we went to Trophy’s for dinner, and there she got her second wind and had a blast with the crayons and toys… actually she was a little loud- I’m glad Trophy’s isn’t particularly known to be a quiet dinner scene.&lt;br /&gt;&lt;br /&gt;&lt;a href="http://3.bp.blogspot.com/_le43ukemYmw/SE97_Of96rI/AAAAAAAAAds/eT6J7mAaKgk/s1600-h/joanuniversal+190.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5210519620045105842" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/SE97_Of96rI/AAAAAAAAAds/eT6J7mAaKgk/s400/joanuniversal+190.jpg" border="0" /&gt;&lt;/a&gt; &lt;img id="BLOGGER_PHOTO_ID_5210521870680263634" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/SE9-COxNC9I/AAAAAAAAAd8/AmQQ_bKH8uw/s400/joanuniversal+189.jpg" border="0" /&gt; We are making it a point to have more outings with Natalia, she loves to observe people and explore her surroundings, home is getting pretty boring for her now... and going out is sooo much fun! Hurray for summer!&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;div&gt;&lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-8793215227394483033?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/8793215227394483033/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=8793215227394483033' title='5 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/8793215227394483033'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/8793215227394483033'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/06/family-outing.html' title='Family Outing'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://1.bp.blogspot.com/_le43ukemYmw/SE979XCiniI/AAAAAAAAAdU/ixg23LBCbAQ/s72-c/joanuniversal+161.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>5</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-4550959413593670902</id><published>2008-05-27T22:20:00.000-07:00</published><updated>2008-05-27T22:46:58.062-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='special needs'/><category scheme='http://www.blogger.com/atom/ns#' term='goofing around'/><category scheme='http://www.blogger.com/atom/ns#' term='Cornelia de Lange'/><category scheme='http://www.blogger.com/atom/ns#' term='ASL'/><category scheme='http://www.blogger.com/atom/ns#' term='bilingual'/><title type='text'>This + that</title><content type='html'>&lt;a href="http://4.bp.blogspot.com/_le43ukemYmw/SDztnmirdeI/AAAAAAAAAcQ/8nE4ayMzKlk/s1600-h/abril+y+mayo+012.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5205296533950133730" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/SDztnmirdeI/AAAAAAAAAcQ/8nE4ayMzKlk/s400/abril+y+mayo+012.jpg" border="0" /&gt;&lt;/a&gt; I can’t believe more than a month has flown by with no posting! Well, Natalia’s been keeping me busy. She has a ton of energy! I remember thinking a few months back that maybe she would always behave like a cuddly baby. But slowly but surely, like everything she does, she has developed this cool little personality. She now D E M A N D S attention.&lt;br /&gt;&lt;br /&gt;She has also found out the great power of reaching her arms. She never used to reach her arms as a sign of something she wanted, and now she reaches her arms and knows she can get someone to carry her or to move towards something she wants. I think it's great until I try to get her to play by herself and she throws a tantrum because she's not getting her way.&lt;br /&gt;&lt;img id="BLOGGER_PHOTO_ID_5205296542540068354" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/SDztoGirdgI/AAAAAAAAAcg/DCISQqNOQVM/s400/abril+y+mayo+071.jpg" border="0" /&gt;&lt;br /&gt;Defying her therapists’ advice, I got her a walker. She absolutely loves the freedom it gives her. When I assembled it I purposely didn’t attach the toy that went in front with the thought that she actually used it as a walker and not a toy. That way she has a clear view of where she can go. It took her a day to find out the difference between it and her excersaucer but now she moves all around the house and enjoys reaching and touching everything. &lt;img id="BLOGGER_PHOTO_ID_5205296542540068338" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/SDztoGirdfI/AAAAAAAAAcY/KN_WYlVANd4/s400/abril+y+mayo+031.jpg" border="0" /&gt;Natalia also had her aunt Laura and cousin Coco come and meet her from Cozumel, Mexico. We loved having them and they fell in love with our peanut.&lt;br /&gt;&lt;img id="BLOGGER_PHOTO_ID_5205296546835035666" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/SDztoWirdhI/AAAAAAAAAco/6rtsTPDCRv8/s400/abril+y+mayo+097.jpg" border="0" /&gt;&lt;br /&gt;As far as signing, I finished my ALS for Infants and Toddlers course and loved every minute of it. It was great to be amongst adults and have extra activities; I didn’t realize how I missed that since I stopped working.&lt;br /&gt;I’ve started to use the signs for “eat” and “more” consistently with Natalia since I started the class. She will look at the signs curiously and keep on doing whatever she doing. No indication that she’s connecting the sign to the concept yet… but I’ll keep you posted. &lt;div&gt;&lt;div&gt;&lt;a href="http://www.aslpro.com/"&gt;Here's&lt;/a&gt; a link in case you want to take a peek at an ASL video dictionary. It was a lifesaver for my class.&lt;/div&gt;I find myself signing randomly pretty often to her; colors, food, animals, whatever. This class opened a wonderful new way of communication for all of our family and we hope it can help our peanut communicate and understand her surroundings. For now I'm just trying to keep it interesting for Naty and hope some day she'll sign back.&lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-4550959413593670902?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/4550959413593670902/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=4550959413593670902' title='4 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/4550959413593670902'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/4550959413593670902'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/05/this-that.html' title='This + that'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/_le43ukemYmw/SDztnmirdeI/AAAAAAAAAcQ/8nE4ayMzKlk/s72-c/abril+y+mayo+012.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>4</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-5070011372186751225</id><published>2008-04-21T21:58:00.000-07:00</published><updated>2008-04-21T22:49:47.046-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='cool stuff'/><category scheme='http://www.blogger.com/atom/ns#' term='PT'/><category scheme='http://www.blogger.com/atom/ns#' term='Cornelia de Lange'/><category scheme='http://www.blogger.com/atom/ns#' term='CdLS'/><title type='text'>My First Review</title><content type='html'>&lt;span style="font-family:arial;"&gt; As I’ve stated before: Natalia is a ceiling fan inspector. If she’s in a position where she can throw herself back she’ll do it, no matter where we are and if there is hard or soft surfaces to catch her. My girl has no fear. A little has rubbed off on me from her Physical Therapist so we know that extending backwards makes those muscles over developed and that only makes her want to extend backwards more, which is a no- no for PT. So we usually try to correct her posture and make her to extend forward and "find her center".&lt;br /&gt;&lt;br /&gt; Well, when I went to the store with Natalia I usually kept her in her baby car seat where she is in an almost lying position. But now Miss Natalia thinks she is too grown up to be in a baby chair (same as her friend Ben ;) ) so one of 2 things happen when we go to a store: either I leave her in the baby seat and put up with Natalia making a fit because she wants to be more upright or I seat her in the child seat of the super market carts and have to hold her with one hand to prevent a ceiling seeking accident.&lt;br /&gt;Until I found this contraption:&lt;br /&gt;&lt;br /&gt;&lt;/span&gt;&lt;br /&gt;&lt;img id="BLOGGER_PHOTO_ID_5191930851230714722" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/SA1xmeX_i2I/AAAAAAAAAb4/pP-2MbNppAA/s400/natalia+17+al+19+month+149.jpg" border="0" /&gt;&lt;br /&gt; &lt;span style="font-family:Arial;"&gt;This thing makes my ventures to Target and Wal-Mart pleasant again. It keeps Natalia in her seat upright. If she gets wobbly and tilts to one side it lends her gentle support so she can find her center again. It also holds her down on her seat so if she wants to inspect ceiling fans she has to fight the contraption.&lt;br /&gt;&lt;br /&gt;Few things I buy are so useful… this was heaven-sent.&lt;br /&gt;&lt;br /&gt;Here is a back view, Velcro is the true hero. You can Velcro it as tight or loose as needed. It has also come pretty handy in restaurant high chairs. It’s not so useful if your priority is keeping germs off since it doesn’t cover the whole cart, but it does give great support. And it only cost me 16dlls!&lt;br /&gt; &lt;img id="BLOGGER_PHOTO_ID_5191930885590453122" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/SA1xoeX_i4I/AAAAAAAAAcI/qtvDL8Z8CKs/s400/natalia+17+al+19+month+150.jpg" border="0" /&gt;&lt;br /&gt;&lt;/span&gt;&lt;span style="font-family:Arial;"&gt;It’s from a brand called NoJo  and it’s called Secure-Me Seat.  &lt;a href="http://www.toysrus.com/product/index.jsp?productId=2608250"&gt;Here is a link&lt;/a&gt;. &lt;br /&gt;&lt;br /&gt;PS, I had N E V E R reviewed anything before, but I just loved this. ;)   &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:arial;"&gt;And Natalia seemed to enjoy feeling in control too.&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;img id="BLOGGER_PHOTO_ID_5191930881295485810" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/SA1xoOX_i3I/AAAAAAAAAcA/oDF_mcgbN4Q/s400/natalia+17+al+19+month+147.jpg" border="0" /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;div&gt; &lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-5070011372186751225?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/5070011372186751225/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=5070011372186751225' title='4 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/5070011372186751225'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/5070011372186751225'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/04/my-first-review.html' title='My First Review'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/_le43ukemYmw/SA1xmeX_i2I/AAAAAAAAAb4/pP-2MbNppAA/s72-c/natalia+17+al+19+month+149.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>4</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-7043240116228698934</id><published>2008-04-12T23:18:00.000-07:00</published><updated>2008-04-12T23:49:56.916-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='special needs'/><category scheme='http://www.blogger.com/atom/ns#' term='Sidrome Cornelia de Lange'/><category scheme='http://www.blogger.com/atom/ns#' term='Cornelia de Lange'/><category scheme='http://www.blogger.com/atom/ns#' term='Ear tubes'/><title type='text'>Uneventful Events</title><content type='html'>&lt;img id="BLOGGER_PHOTO_ID_5188613003304042578" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/SAGoCTrpAFI/AAAAAAAAAbY/_pLHf9LYt3I/s400/natalia+17+al+19+month+153.jpg" border="0" /&gt;&lt;br /&gt;&lt;br /&gt;&lt;p&gt;&lt;span style="font-family:arial;"&gt;Aren’t you thankful for days that just sort of zip by completely uneventful? It may seem weird to appreciate this, but once you’ve had unexpected and stressful “eventfulness” in your life I guess it’s normal to be thrilled when you your days are completely Ho Hum.&lt;br /&gt;&lt;br /&gt;That’s what all these days have been like for me. I finally feel the dust has settled since I stopped working. There have been a few moments that I miss my office but mostly I'm really thankful I have the opportunity to stay at home with Natalia. We have kept busy though. Here’s a rundown of events: &lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:arial;"&gt;FINALLY she had tubes placed in. This event majored in uneventfulness Thank God!!&lt;/span&gt;&lt;span style="font-family:Arial;"&gt;&lt;img id="BLOGGER_PHOTO_ID_5188612990419140658" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/SAGoBjrpADI/AAAAAAAAAbI/pLQhjjrQBsk/s400/natalia+17+al+19+month+096.jpg" border="0" /&gt;&lt;/span&gt;&lt;/p&gt;&lt;p align="center"&gt;&lt;span style="font-family:Arial;"&gt;She had her 18 month well check and everything went great,she weighed 16.8lbs and 27". Thank goodness she’s a healthy lil peanut.&lt;/span&gt; &lt;/p&gt;&lt;p&gt;&lt;img id="BLOGGER_PHOTO_ID_5188613011893977202" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/SAGoCzrpAHI/AAAAAAAAAbo/a35Ur56lCHc/s400/natalia+17+al+19+month+118.jpg" border="0" /&gt;&lt;/p&gt;&lt;p align="center"&gt;&lt;span style="font-family:arial;"&gt;We are still going to OT and PT. Both are going great. &lt;/span&gt;&lt;img id="BLOGGER_PHOTO_ID_5188613733448482946" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/SAGoszrpAII/AAAAAAAAAbw/isnLoUpkQvE/s400/natalia+17+al+19+month+121.jpg" border="0" /&gt;&lt;/p&gt;&lt;p align="center"&gt;&lt;span style="font-family:Arial;"&gt;The bad news is since Natalia discovered standing and walking she resists tummy time with all her might.&lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;object width="320" height="266" class="BLOG_video_class" id="BLOG_video-6851ba156a42f480" classid="clsid:D27CDB6E-AE6D-11cf-96B8-444553540000" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=6,0,40,0"&gt;&lt;param name="movie" value="http://www.blogger.com/img/videoplayer.swf?videoUrl=http%3A%2F%2Fvp.video.google.com%2Fvideodownload%3Fversion%3D0%26secureurl%3DqAAAAIiSxp13MRsP2RXZVN7myjJX68FKAkQRIj1hsbMfSukdYv2j_xxq-tHq7WMQLmJlhrJNms2YXUnjEoyT0RWcvaIfzuZGLYsdsYa_15fvJ1qnsqbj-7NJB7lUR0Xgh5OSVkCO3FVscX_sJjMrA-rtwxnSvjd1y9uG0FoxW0gJN1lNHl7dS5xoH9uqGs4Ug0GvLRv43O-iTuyoPXsre12iiATjW9coodGRLe7ctRKS0maW%26sigh%3D4xOv-BZ-u27IWG4m--DLTqUxTn0%26begin%3D0%26len%3D86400000%26docid%3D0&amp;amp;nogvlm=1&amp;amp;thumbnailUrl=http%3A%2F%2Fvideo.google.com%2FThumbnailServer2%3Fapp%3Dblogger%26contentid%3D6851ba156a42f480%26offsetms%3D5000%26itag%3Dw320%26sigh%3DsZNjvHDSvHODWBjZFJ0HCDBsQhQ&amp;amp;messagesUrl=video.google.com%2FFlashUiStrings.xlb%3Fframe%3Dflashstrings%26hl%3Den"&gt;&lt;param name="bgcolor" value="#FFFFFF"&gt;&lt;embed width="320" height="266" src="http://www.blogger.com/img/videoplayer.swf?videoUrl=http%3A%2F%2Fvp.video.google.com%2Fvideodownload%3Fversion%3D0%26secureurl%3DqAAAAIiSxp13MRsP2RXZVN7myjJX68FKAkQRIj1hsbMfSukdYv2j_xxq-tHq7WMQLmJlhrJNms2YXUnjEoyT0RWcvaIfzuZGLYsdsYa_15fvJ1qnsqbj-7NJB7lUR0Xgh5OSVkCO3FVscX_sJjMrA-rtwxnSvjd1y9uG0FoxW0gJN1lNHl7dS5xoH9uqGs4Ug0GvLRv43O-iTuyoPXsre12iiATjW9coodGRLe7ctRKS0maW%26sigh%3D4xOv-BZ-u27IWG4m--DLTqUxTn0%26begin%3D0%26len%3D86400000%26docid%3D0&amp;amp;nogvlm=1&amp;amp;thumbnailUrl=http%3A%2F%2Fvideo.google.com%2FThumbnailServer2%3Fapp%3Dblogger%26contentid%3D6851ba156a42f480%26offsetms%3D5000%26itag%3Dw320%26sigh%3DsZNjvHDSvHODWBjZFJ0HCDBsQhQ&amp;amp;messagesUrl=video.google.com%2FFlashUiStrings.xlb%3Fframe%3Dflashstrings%26hl%3Den" type="application/x-shockwave-flash"&gt;&lt;/embed&gt;&lt;/object&gt;&lt;/p&gt;&lt;p align="center"&gt;&lt;span style="font-family:arial;"&gt;She has developed an A T T I T U D E !!!&lt;/span&gt; &lt;span style="font-family:Arial;"&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;img id="BLOGGER_PHOTO_ID_5188613011893977186" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/SAGoCzrpAGI/AAAAAAAAAbg/YMRnkMh_bZA/s400/natalia+17+al+19+month+111.jpg" border="0" /&gt;&lt;/p&gt;&lt;p&gt;&lt;/p&gt;&lt;p align="center"&gt;&lt;span style="font-family:arial;"&gt;In other events: I’ve already attended 2 classes of ASL for infants &amp;amp; Toddler. It is AWSOME !! The catch? It’s not as easy as I thought it would be… I got a B+ on my first quiz… :(&lt;/span&gt;&lt;/p&gt;&lt;p align="center"&gt;&lt;span style="font-family:Arial;"&gt;Now BEWARE an overdose of uneventfulness can result in:&lt;/span&gt;&lt;/p&gt;&lt;p align="center"&gt;&lt;span style="font-family:Arial;"&gt;&lt;img id="BLOGGER_PHOTO_ID_5188613003304042562" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/SAGoCTrpAEI/AAAAAAAAAbQ/nGd48fOSbOw/s400/natalia+17+al+19+month+039.jpg" border="0" /&gt;&lt;/span&gt;&lt;/p&gt;&lt;p align="center"&gt;&lt;span style="font-family:Arial;"&gt;&lt;/span&gt;&lt;/p&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-7043240116228698934?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='enclosure' type='video/mp4' href='http://www.blogger.com/video-play.mp4?contentId=6851ba156a42f480&amp;type=video%2Fmp4' length='0'/><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/7043240116228698934/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=7043240116228698934' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/7043240116228698934'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/7043240116228698934'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/04/uneventful-events.html' title='Uneventful Events'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://2.bp.blogspot.com/_le43ukemYmw/SAGoCTrpAFI/AAAAAAAAAbY/_pLHf9LYt3I/s72-c/natalia+17+al+19+month+153.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-1207665101759188540</id><published>2008-03-31T17:47:00.000-07:00</published><updated>2008-03-31T18:25:39.768-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='goofing around'/><category scheme='http://www.blogger.com/atom/ns#' term='play date'/><category scheme='http://www.blogger.com/atom/ns#' term='CdLS'/><title type='text'>Dancing Queen</title><content type='html'>Here's a little of what Natalia's been up to, she has been so active lately, she practically demands we go outside and play...I love it!&lt;br /&gt;&lt;br /&gt;&lt;object width="320" height="266" class="BLOG_video_class" id="BLOG_video-dd9081830232e87b" classid="clsid:D27CDB6E-AE6D-11cf-96B8-444553540000" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=6,0,40,0"&gt;&lt;param name="movie" value="http://www.blogger.com/img/videoplayer.swf?videoUrl=http%3A%2F%2Fvp.video.google.com%2Fvideodownload%3Fversion%3D0%26secureurl%3DqAAAABjzXX0P2a8vxnDt-OvRPGBoZ7nTRDz5JsG-vz8quI6a2TeRahXsV5p5QgUVWplj4NvJcsm91_Kel5DqQogRRH0Ti3CpMf3G2ZGGjjzql1rBz_xe94zMYztbhGLBTPiRUgyndD0LC1uo_6J3w3KobnZ8Y6CwEO-32x-lfWdIkA-OUOckuaO1TDqaIt12fAZ8aqtpmY5QEV_O1wlBeqt67OTOofnsUnCkHhz92hsIXgzr%26sigh%3DGkqMzjKOwj50GCijaNpaxXb5EBg%26begin%3D0%26len%3D86400000%26docid%3D0&amp;amp;nogvlm=1&amp;amp;thumbnailUrl=http%3A%2F%2Fvideo.google.com%2FThumbnailServer2%3Fapp%3Dblogger%26contentid%3Ddd9081830232e87b%26offsetms%3D5000%26itag%3Dw320%26sigh%3DzpUXgUc2H0bwiSxuQH4pJElyppk&amp;amp;messagesUrl=video.google.com%2FFlashUiStrings.xlb%3Fframe%3Dflashstrings%26hl%3Den"&gt;&lt;param name="bgcolor" value="#FFFFFF"&gt;&lt;embed width="320" height="266" src="http://www.blogger.com/img/videoplayer.swf?videoUrl=http%3A%2F%2Fvp.video.google.com%2Fvideodownload%3Fversion%3D0%26secureurl%3DqAAAABjzXX0P2a8vxnDt-OvRPGBoZ7nTRDz5JsG-vz8quI6a2TeRahXsV5p5QgUVWplj4NvJcsm91_Kel5DqQogRRH0Ti3CpMf3G2ZGGjjzql1rBz_xe94zMYztbhGLBTPiRUgyndD0LC1uo_6J3w3KobnZ8Y6CwEO-32x-lfWdIkA-OUOckuaO1TDqaIt12fAZ8aqtpmY5QEV_O1wlBeqt67OTOofnsUnCkHhz92hsIXgzr%26sigh%3DGkqMzjKOwj50GCijaNpaxXb5EBg%26begin%3D0%26len%3D86400000%26docid%3D0&amp;amp;nogvlm=1&amp;amp;thumbnailUrl=http%3A%2F%2Fvideo.google.com%2FThumbnailServer2%3Fapp%3Dblogger%26contentid%3Ddd9081830232e87b%26offsetms%3D5000%26itag%3Dw320%26sigh%3DzpUXgUc2H0bwiSxuQH4pJElyppk&amp;amp;messagesUrl=video.google.com%2FFlashUiStrings.xlb%3Fframe%3Dflashstrings%26hl%3Den" type="application/x-shockwave-flash"&gt;&lt;/embed&gt;&lt;/object&gt;&lt;div&gt;&lt;img id="BLOGGER_PHOTO_ID_5184078778838985890" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/R_GMLtRWrKI/AAAAAAAAAag/C3xhU2ktZ_M/s400/march+2008+104.jpg" border="0" /&gt;&lt;img id="BLOGGER_PHOTO_ID_5184078770249051282" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/R_GMLNRWrJI/AAAAAAAAAaY/D4xcBqum374/s400/march+2008+093.jpg" border="0" /&gt; &lt;img id="BLOGGER_PHOTO_ID_5184080595610152114" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/R_GN1dRWrLI/AAAAAAAAAao/M6FDjMasnoc/s400/march+2008+106.jpg" border="0" /&gt;&lt;br /&gt;&lt;img id="BLOGGER_PHOTO_ID_5184080599905119426" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/R_GN1tRWrMI/AAAAAAAAAaw/6t63x8KZ5XI/s400/march+2008+014.jpg" border="0" /&gt;&lt;br /&gt;&lt;p&gt;&lt;/p&gt;&lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-1207665101759188540?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='enclosure' type='video/mp4' href='http://www.blogger.com/video-play.mp4?contentId=dd9081830232e87b&amp;type=video%2Fmp4' length='0'/><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/1207665101759188540/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=1207665101759188540' title='5 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/1207665101759188540'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/1207665101759188540'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/03/dancing-queen.html' title='Dancing Queen'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/_le43ukemYmw/R_GMLtRWrKI/AAAAAAAAAag/C3xhU2ktZ_M/s72-c/march+2008+104.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>5</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-8477640275153423672</id><published>2008-03-06T13:53:00.000-08:00</published><updated>2008-03-06T13:55:41.174-08:00</updated><title type='text'>First Big Project</title><content type='html'>&lt;span style="font-family:arial;"&gt;   When I started being a stay at home mom I said I would take a month vacation… guess what? Times up!!  Once I got my routine organized I began thinking about what I should do first and came up with 4 projects that really excite me, but my first priority was to schedule every possible future appointment for Natalia. Being used to track people down on the phone, but that only took 2 days of phone calls. So now what? &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:arial;"&gt;&lt;br /&gt;   My second main concern for Natalia is her communication skills (in case you’re wondering her borderline Prolonged QT Syndrome is the first). Natalia is around the 3 to 4 month level in her communication skills, she coos and sometimes screams vowel sounds to get her point across. She still uses primarily the aaaaa’s, no consonants yet. Although most of the time I understand her queues, I can tell there is a level of frustration when there is something I don’t get right away. She’s started to pull her hair softly when this happens, or gets very worked up.  Now, there are a few reasons for her to be at the 3 to 4 month stage, one is that she has some hearing impairment. To address this we’re waiting for her tubes to be placed in her ears at the end of March and after that she can have the much waited for BER &amp;amp; ASSR. All this is needed to proceed with hearing aids that will ultimately help her hear well.&lt;br /&gt;&lt;br /&gt;   Now, I’m not fooling myself, I know all too well that this is no guarantee that Natalia will magically start talking when all this is taken care of since one of the characteristics of Cornelia de Lange syndrome is the absence of words to communicate. But she will have a better chance at understanding her surroundings and I’m sure that will make a huge difference. Fortunately there are other options to help our kids communicate, like sign language. So there is my first big project: I have enrolled in a college course: &lt;strong&gt;American Sign Language for Infants and Toddlers&lt;/strong&gt;, I start the April 1st!!! It’s a 2 hour once a week 3 month course focused on signs that target communication with infants and toddlers with or without hearing and speech impairment. I’m very excited!! It’s been a while since I finished my Master’s so I think I’m quite rusty in the study department. But the level of motivation I feel is almost overwhelming. I can’t wait to start! &lt;/span&gt;&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-8477640275153423672?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/8477640275153423672/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=8477640275153423672' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/8477640275153423672'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/8477640275153423672'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/03/first-big-project.html' title='First Big Project'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-5074383142946973081</id><published>2008-02-28T22:56:00.000-08:00</published><updated>2008-02-29T09:59:47.369-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Ear tubes'/><category scheme='http://www.blogger.com/atom/ns#' term='hearing test'/><category scheme='http://www.blogger.com/atom/ns#' term='Borderline Prolonged QT Syndrome'/><category scheme='http://www.blogger.com/atom/ns#' term='CdLS'/><title type='text'>Tough call</title><content type='html'>&lt;a href="http://2.bp.blogspot.com/_le43ukemYmw/R8ezrveiC3I/AAAAAAAAAZ8/RXmJjz7dA08/s1600-h/piyama+play.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5172300261118577522" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/R8ezrveiC3I/AAAAAAAAAZ8/RXmJjz7dA08/s400/piyama+play.jpg" border="0" /&gt;&lt;/a&gt;&lt;br /&gt;&lt;a href="http://2.bp.blogspot.com/_le43ukemYmw/R8ezsveiC4I/AAAAAAAAAaE/-cH3kA5BO90/s1600-h/vegas+smile.jpg"&gt;&lt;/a&gt;&lt;span style="font-family:arial;"&gt;We had a Cardiology appointment where very troubling news was confirmed: Natalia has &lt;a href="http://www.qtsyndrome.ch/faq.html"&gt;borderline Prolonged QT syndrome&lt;/a&gt;. Her EKG score from the Holter monitor was 460, and anything between 440 milliseconds and 470 is considered borderline Prolonged QT. The more I read about it online the more upset I get about and it confuses me because her Cardiologist told me that there was no imminent danger, so who do I believe, the doctor or the internet? The bottom line is that she can never have any type of anesthesia without being in a controlled environment, that means being able to monitor her vitals and having a &lt;a href="http://en.wikipedia.org/wiki/Defibrillation"&gt;defibrillator&lt;/a&gt; handy and someone qualified to use it. Just thinking about re-living the single most dreaded event we have ever lived (Naty’s cardiac arrest last year) makes me sick to my stomach.&lt;br /&gt;&lt;br /&gt;This brings up all sorts of issues: her hearing test was cancelled AGAIN (this is the 3rd time!!) for two reasons.&lt;br /&gt;#1 still has fluid in her ears&lt;br /&gt;#2 they sedate kids who are over 1yr with &lt;a href="http://en.wikipedia.org/wiki/Chloral_hydrate"&gt;chloral hydrate &lt;/a&gt;but NO T in a “controlled environment”&lt;br /&gt;&lt;br /&gt;So here comes the tough part: she needs to have&lt;a href="http://pedsent.com/surgery/eartubes.htm"&gt; tubes &lt;/a&gt;put in to drain the ears; this means general anesthesia= S C A R Y&lt;br /&gt;After that she will need to have the hearing test again but in a day surgery ward, even though her sedation will only be chloral hydrate = S C A R Y&lt;br /&gt;&lt;br /&gt;The only other alternative is for her to not have these procedures but that would mean that she would never have a fair shot at hearing better thus being able to communicate by speech. It's an extremly dificult desicion to make but Juan and I feel that we should trust the Cardiologists (we spoke to 3 of them) and give Natalia a fair shot at verbal comunication.&lt;br /&gt;&lt;br /&gt;I feel all I can do is pray that we’re doing the best for Natalia and that these procedures work out perfect.&lt;/span&gt; &lt;span style="font-family:arial;"&gt;&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-5074383142946973081?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/5074383142946973081/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=5074383142946973081' title='4 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/5074383142946973081'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/5074383142946973081'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/02/tough-shot.html' title='Tough call'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://2.bp.blogspot.com/_le43ukemYmw/R8ezrveiC3I/AAAAAAAAAZ8/RXmJjz7dA08/s72-c/piyama+play.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>4</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-3542442654986826621</id><published>2008-02-25T20:22:00.000-08:00</published><updated>2008-02-25T21:31:20.463-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Teething'/><category scheme='http://www.blogger.com/atom/ns#' term='CdLS'/><title type='text'>Say Aaaaaa</title><content type='html'>So these are the little suckers that've made my peanut's life imposible! I'm glad their finally out, although I know the bottom ones are only the beginning...&lt;br /&gt;&lt;a href="http://1.bp.blogspot.com/_le43ukemYmw/R8OU9YSeAtI/AAAAAAAAAZ0/CfvtywdPdzY/s1600-h/febrero+25+002.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5171140579364307666" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/R8OU9YSeAtI/AAAAAAAAAZ0/CfvtywdPdzY/s400/febrero+25+002.jpg" border="0" /&gt;&lt;/a&gt;&lt;br /&gt;&lt;div&gt; &lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-3542442654986826621?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/3542442654986826621/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=3542442654986826621' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/3542442654986826621'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/3542442654986826621'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/02/say-aaaaaa.html' title='Say Aaaaaa'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://1.bp.blogspot.com/_le43ukemYmw/R8OU9YSeAtI/AAAAAAAAAZ0/CfvtywdPdzY/s72-c/febrero+25+002.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-8408923571359534370</id><published>2008-02-24T22:06:00.000-08:00</published><updated>2008-02-24T23:05:14.082-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='bearing weight'/><category scheme='http://www.blogger.com/atom/ns#' term='PT'/><category scheme='http://www.blogger.com/atom/ns#' term='standing'/><category scheme='http://www.blogger.com/atom/ns#' term='CdLS'/><title type='text'>I might burst</title><content type='html'>&lt;div align="center"&gt;&lt;br /&gt;&lt;/div&gt;&lt;div align="center"&gt;I'm so proud of my Naty.&lt;br /&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;img id="BLOGGER_PHOTO_ID_5170796621203374594" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/R8JcIYSeAgI/AAAAAAAAAYM/onGsraCLBh8/s400/big+girl+vegas+dinner.jpg" border="0" /&gt;&lt;/div&gt;&lt;p align="center"&gt;Here she is doing her favorite thing now a days (don't mind the gtube dragging along our hallway):&lt;br /&gt;&lt;/p&gt;&lt;img id="BLOGGER_PHOTO_ID_5170797793729446482" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/R8JdMoSeAlI/AAAAAAAAAY0/TXuAFfo4mwY/s400/walking+peanut.jpg" border="0" /&gt; &lt;p align="center"&gt;She enjoys other kids and wants to play with them (I think she desperately needs a little brother or sister) ;)&lt;/p&gt;&lt;img id="BLOGGER_PHOTO_ID_5170801448746615442" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/R8JghYSeApI/AAAAAAAAAZU/RXUNkZ6jh4w/s400/ashes+ashes+we+all+fall+down.jpg" border="0" /&gt;&lt;br /&gt;&lt;br /&gt;&lt;div align="center"&gt;PT has done amazing things for her , she's come a long way.&lt;/div&gt;&lt;br /&gt;&lt;img id="BLOGGER_PHOTO_ID_5170796668448014914" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/R8JcLISeAkI/AAAAAAAAAYs/1xW8HrU54J4/s400/pt+february.jpg" border="0" /&gt; She feels she's such a big girl, she doesn't want to be laying down for long periods of time and fusses until someone either sits her up or helps her walk around. &lt;img id="BLOGGER_PHOTO_ID_5170801470221451938" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/R8JgioSeAqI/AAAAAAAAAZc/5paUARFOGNM/s400/e320+075.jpg" border="0" /&gt;&lt;br /&gt;&lt;a href="http://1.bp.blogspot.com/_le43ukemYmw/R8JdNoSeAnI/AAAAAAAAAZE/I7t4pWdTvQc/s1600-h/r+and+r+with+grandpa.jpg"&gt;&lt;/a&gt;This is a cool gift she got from a family friend. The pony actually makes neighing sounds and moves his head and tail. Natalia loves it. We've named him Pinto.&lt;br /&gt;&lt;a href="http://1.bp.blogspot.com/_le43ukemYmw/R8JdOoSeAoI/AAAAAAAAAZM/aI7mS5a4c4c/s1600-h/gidiup+pinto+2.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5170797828089184898" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/R8JdOoSeAoI/AAAAAAAAAZM/aI7mS5a4c4c/s400/gidiup+pinto+2.jpg" border="0" /&gt; &lt;p align="center"&gt;&lt;/a&gt;&lt;br /&gt;O my gosh, I *heart* this girl so much!!&lt;/p&gt;&lt;img id="BLOGGER_PHOTO_ID_5170797802319381090" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/R8JdNISeAmI/AAAAAAAAAY8/8JWG_4DBr08/s400/i+heart+natalia.jpg" border="0" /&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-8408923571359534370?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/8408923571359534370/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=8408923571359534370' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/8408923571359534370'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/8408923571359534370'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/02/im-so-proud-of-my-naty.html' title='I might burst'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/_le43ukemYmw/R8JcIYSeAgI/AAAAAAAAAYM/onGsraCLBh8/s72-c/big+girl+vegas+dinner.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-5919836369893478011</id><published>2008-02-20T14:27:00.000-08:00</published><updated>2008-02-20T14:31:41.109-08:00</updated><title type='text'>A New Beginning</title><content type='html'>&lt;span style="font-family:arial;"&gt;I am no longer a working mom. (almost 3 weeks now). The company where I worked downsized and  it was an obvious choice for them to cut the person who asked for the most permissions (I always tried to go to Natalia’s therapies and appointments). It ended up a very friendly parting, I worked there for 9 years and they we’re very generous with their compensation. But it was still completely shocking to arrive to my office and start with my morning routine and then 1 hr later get a call from the boss to go up to his office and be told “we’re going to let you go”. This was definitely not in out plans; I wanted to stop working until I had a second child. But if having our precious baby has taught me one thing it is to roll with the punches, so after two days of complete bewilderment I slowly started seeing this as a great opportunity. Don’t get me wrong: I didn’t work for pleasure. But, after sitting down with my husband to talk and make some budget adjustments, we concurred that we can live well with only my husband’s income. So this officially makes me a stay at home mom.&lt;br /&gt;&lt;br /&gt;So everyone would think I have all this extra time to blog: um NO! At least not for the moment (although I want to). I am still in the process of learning to organizing my time, which is resulting to be quite a task. Staying at home makes time fly by, when I realize it’s already 11am and I haven’t showered. Then I feel bad thinking that by this time at work I would already have been thinking about lunch plans… and here I am in sweats and not have had breakfast. I know it’s a matter of getting used to, but I haven’t been able to kick off the feeling that these are vacations. So I have officially given myself a month of vacations: no thinking, no official plan making, just chilling (or trying to chill).&lt;br /&gt;&lt;br /&gt;Of course the reason we decided I’ll stay at home in Natalia.  I’m soaking up every second with her. We have increased early intervention home visits; I’m working on her feeding, since she’s stopped wanting anything by mouth and just basically focusing on her 100%, being able to do this is a true blessing. &lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-5919836369893478011?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/5919836369893478011/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=5919836369893478011' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/5919836369893478011'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/5919836369893478011'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/02/new-beginning.html' title='A New Beginning'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-2618992506229367249</id><published>2008-01-28T22:08:00.000-08:00</published><updated>2008-01-28T23:17:04.740-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Hernia'/><category scheme='http://www.blogger.com/atom/ns#' term='upper GI'/><category scheme='http://www.blogger.com/atom/ns#' term='Sidrome Cornelia de Lange'/><category scheme='http://www.blogger.com/atom/ns#' term='G-Tube'/><category scheme='http://www.blogger.com/atom/ns#' term='CdLS'/><title type='text'>Unexpected news</title><content type='html'>&lt;span style="font-family:arial;"&gt;It’s been cold and rainy the past few days so we didn’t do much this weekend, just stayed nice, toasty and dry at home. But today we were forced to take Natalia out since she had a follow up appointment with her GI doctor. So I bundled her up to face the cold (no hat of course).&lt;br /&gt;&lt;img id="BLOGGER_PHOTO_ID_5160782194030904018" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/R57ID_5fgtI/AAAAAAAAAXs/phK9JVUT8ts/s400/Diciembre+07+y++Enero+08+082.jpg" border="0" /&gt;&lt;br /&gt;She had an upper GI test a few weeks ago and we were given the un-official results then and there that her Fundo is holding up perfectly. We were thrilled and that’s what we were expecting to hear in today's GI apointment, so it was a complete surprise to hear the other news her doctor had for us: Natalia has a &lt;a href="http://en.wikipedia.org/wiki/Hernia"&gt;hernia&lt;/a&gt; in her tiny stomach!! The doc thinks that the hernia developed now that she's spending more time sitting than laying down. That extra weight bearing in her stomach may have caused her stomach muscle to rub with her gtube and caused the hernia. I was in complete shock... I just never new this could happen. . My only comfort is that I don’t believe Natalia’s in any pain, she can communicate pain really well. There really isn’t much we can do now so we’re just going to observe her and see how she does and evaluate if surgery in needed. I'm praying she doesn't, last surgery was tough on her.&lt;/span&gt;&lt;span style="font-family:arial;"&gt; &lt;div&gt;&lt;br /&gt;She isn’t gaining a lot of weight either; she only gained about 6 oz since Dec. But I now that she’s on her own agenda with that as well… although she still is plotting very well in the CdLS height and weight charts, so I’m not going to loose any sleep about this. She's the pink dot.&lt;/div&gt;&lt;div&gt;&lt;img id="BLOGGER_PHOTO_ID_5160782258455413506" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/R57IHv5fgwI/AAAAAAAAAYE/xCt6BvPD4is/s400/weight_17_months%5B1%5D.JPG" border="0" /&gt;&lt;/div&gt;&lt;div&gt;&lt;br /&gt;&lt;img id="BLOGGER_PHOTO_ID_5160782254160446194" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/R57IHf5fgvI/AAAAAAAAAX8/yDQ-a8RZ8jY/s400/height_17_months%5B1%5D.JPG" border="0" /&gt;&lt;br /&gt;Her stats at 17 months: Weight 15lbs; Height 25.5 inches. and 100% CUTEPIE!!&lt;br /&gt;&lt;img id="BLOGGER_PHOTO_ID_5160782202620838626" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/R57IEf5fguI/AAAAAAAAAX0/oldcQHXgpEU/s400/pretty+in+pink.jpg" border="0" /&gt;&lt;br /&gt;&lt;/span&gt;&lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-2618992506229367249?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/2618992506229367249/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=2618992506229367249' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/2618992506229367249'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/2618992506229367249'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/01/unexpected-news.html' title='Unexpected news'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://3.bp.blogspot.com/_le43ukemYmw/R57ID_5fgtI/AAAAAAAAAXs/phK9JVUT8ts/s72-c/Diciembre+07+y++Enero+08+082.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-522173849718963507</id><published>2008-01-14T23:17:00.000-08:00</published><updated>2008-01-14T23:42:20.516-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='special needs'/><category scheme='http://www.blogger.com/atom/ns#' term='Sidrome Cornelia de Lange'/><category scheme='http://www.blogger.com/atom/ns#' term='Cornelia de Lange'/><category scheme='http://www.blogger.com/atom/ns#' term='random facts'/><title type='text'>Natalia 101</title><content type='html'>Here are a few random facts so you get to know my peanut a little better (in no particular order):&lt;br /&gt;&lt;br /&gt;1. Natalia was born at 36 weeks, she was 3lbs 4oz and 13.75 inches long&lt;br /&gt;2. She is still in reign since she still has no brothers or sisters&lt;br /&gt;3. When she was born the length from her knee to her ankle was 2 inches&lt;br /&gt;4. She has no speech, but definitely has different sounds (and faces) for different feelings and situations, thus gets her point across clearly.&lt;br /&gt;5. At one point in her life that she was taking 8 medicines, we had a white board to keep track of times and doses delivered.&lt;br /&gt;6. She had her ears pierced when she was 4 months old by a little old nun at the local hospital. She didn’t even flinch.&lt;br /&gt;7. When she was born we were told she would never react to human contact and that she wouldn’t live beyond 1 year. Well, they obviously didn’t know who they were talking about: 16 month and going STRONG!!&lt;br /&gt;8. If she laughs it humanly impossible not to laugh with her.&lt;br /&gt;9. At 16 months she’s teething, her front lower gums are about to explode.&lt;br /&gt;10. She rolled over at 8 months.&lt;br /&gt;11. Natalia loves music; the louder it is the louder SHE is.&lt;br /&gt;12. She wears 6 to 12 month size clothes.&lt;br /&gt;13. Like many CDLS kiddoes, Natalia was born with GERD.&lt;br /&gt;14. When she was 2 month old we found out she had some seizure activity, she used to look ever so briefly to the right as if in a daze. It didn’t seem natural to me so after some tests she was diagnosed with epilepsy and been on Keppra ever since.&lt;br /&gt;15. She L.O.V.E.S textures: leather, silk, fur, chiffon … the softer the better. She can stroke it for hours.&lt;br /&gt;16. Every single time we carry her she throws herself back and looks at the ceiling while being carried, this has been going on for her whole life.&lt;br /&gt;17. She loves to be thrown up in the air by her dad, she laughs her head off. We firmly believe she’s hooked on adrenaline.&lt;br /&gt;18. Our princess had her Fundoplication &amp;amp; GI tube operation when she was 10 months, she was given to much anesthesia and went into Cardiac Arrest. But being the fighter she is was out in 22 days, including extra days in hospital because on pneumonia and C-diff.&lt;br /&gt;19. Natalia has the most beautiful dark, stranger stopping eyelashes.&lt;br /&gt;20. When she was born she was stared upon for being soooooo tiny.&lt;br /&gt;21. When she was 2 months old it was a reason to celebrate if she drank 2 oz (60mls)&lt;br /&gt;22. She has the most beautiful smile, no, really, it’s amazing!&lt;br /&gt;23. As of today she sits unsupported until she’s had it (about 20 minutes), stands with support (although we’re working on her not sticking her bottom out) and taking tiny tiny baby steps while holding on to BOTH hands. This is very VERY exciting!&lt;br /&gt;24. Natalia has crazy curly hair, if you don’t believe me check out some other pictures. This is the reason I make it a point of giving her a hairdo every day (almost every day).&lt;br /&gt;25. Her feet are soooo small that all she wore were sock until last Nov when the weather started getting chilly. As of today she still wears 0-3 month baby shoes.&lt;br /&gt;26. She’s a San Diego Charger fan 100% (ok, so maybe her parents are…)&lt;br /&gt;27. Her wardrobe is just insane. But I plea no contest: baby girl clothes are just too darn cute!!&lt;br /&gt;28. I'm a better person because of her. She's shown me what true unconditional love is.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-522173849718963507?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/522173849718963507/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=522173849718963507' title='6 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/522173849718963507'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/522173849718963507'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/01/natalia-101.html' title='Natalia 101'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>6</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-9098773044894723491</id><published>2008-01-12T19:51:00.000-08:00</published><updated>2008-01-12T21:10:37.306-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='upper GI'/><category scheme='http://www.blogger.com/atom/ns#' term='car show'/><category scheme='http://www.blogger.com/atom/ns#' term='CdLS'/><title type='text'>GI &amp; show</title><content type='html'>&lt;span style="font-family:Arial;"&gt;Friday Natalia had an upper GI done as a follow up of her last hospital stay. My main concern was that her Nissen fundoplication was compromised and that her GERD was an issue again. Well, we don’t have the official results from her GI but the doctor who performed the test said her Nissen&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Arial;"&gt;was still tight. :) So 2008 is starting on the right track!! &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Arial;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Arial;"&gt;We recently we had a family outing. My husband loves cars, so of course, if there's an international car show in town our family is there. &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Arial;"&gt;&lt;img id="BLOGGER_PHOTO_ID_5154817762706782930" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/R4mXcZwC-tI/AAAAAAAAAW8/o8saCM6_Ca4/s320/Principios+de+Enero+08+013.jpg" border="0" /&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Arial;"&gt;Juan wanted to be early so he could take his time drooling over, umm I mean admiring every car in the show, but we aren't that organized (yet) so we made it there at around 3pm. &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Arial;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Arial;"&gt;&lt;img id="BLOGGER_PHOTO_ID_5154817762706782946" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/R4mXcZwC-uI/AAAAAAAAAXE/UzQkGXP146Y/s320/Principios+de+Enero+08+016.jpg" border="0" /&gt;&lt;/span&gt; &lt;span style="font-family:Arial;"&gt;There was a lot of bustle which Natalia seemed to enjoy. Juan was a great guide to the show, he made sure and made sure Natalia had a picture of each of his favorite. &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Arial;"&gt;&lt;img id="BLOGGER_PHOTO_ID_5154817771296717554" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/R4mXc5wC-vI/AAAAAAAAAXM/FBXryqvCzkw/s320/Principios+de+Enero+08+023.jpg" border="0" /&gt;&lt;/span&gt; &lt;span style="font-family:arial;"&gt;Especialy the new Challenger!!! (Yup, I don't get it eaither)&lt;/span&gt;&lt;br /&gt;&lt;a href="http://1.bp.blogspot.com/_le43ukemYmw/R4mXc5wC-wI/AAAAAAAAAXU/LsHeFHKgndo/s1600-h/Principios+de+Enero+08+035.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5154817771296717570" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/R4mXc5wC-wI/AAAAAAAAAXU/LsHeFHKgndo/s320/Principios+de+Enero+08+035.jpg" border="0" /&gt;&lt;/a&gt;&lt;span style="font-family:arial;"&gt; Now &lt;strong&gt;this&lt;/strong&gt; I could get: a $500,000 Rolls Royce. This car was just AMAZING!!&lt;/span&gt;&lt;br /&gt;&lt;a href="http://2.bp.blogspot.com/_le43ukemYmw/R4mXdJwC-xI/AAAAAAAAAXc/5REnvVgmc5Q/s1600-h/Principios+de+Enero+08+054.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5154817775591684882" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/R4mXdJwC-xI/AAAAAAAAAXc/5REnvVgmc5Q/s320/Principios+de+Enero+08+054.jpg" border="0" /&gt;&lt;/a&gt;&lt;br /&gt;&lt;span style="font-family:arial;"&gt;We had a great time, but what really excites me is that it's MY turn to choose our next family outing.... and no more cars.&lt;br /&gt;&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-9098773044894723491?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/9098773044894723491/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=9098773044894723491' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/9098773044894723491'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/9098773044894723491'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/01/gi-show.html' title='GI &amp; show'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://3.bp.blogspot.com/_le43ukemYmw/R4mXcZwC-tI/AAAAAAAAAW8/o8saCM6_Ca4/s72-c/Principios+de+Enero+08+013.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-1062409881881840251</id><published>2008-01-07T22:17:00.000-08:00</published><updated>2008-01-07T23:13:04.408-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Holter monitor'/><category scheme='http://www.blogger.com/atom/ns#' term='Cornelia de Lange'/><category scheme='http://www.blogger.com/atom/ns#' term='new year party'/><category scheme='http://www.blogger.com/atom/ns#' term='first steps'/><title type='text'>A new year</title><content type='html'>&lt;div&gt;&lt;div align="center"&gt;HAPPY NEW YEAR!!!!&lt;br /&gt;&lt;a href="http://4.bp.blogspot.com/_le43ukemYmw/R4MdfJwC-lI/AAAAAAAAAWA/EMiYXUGkPQE/s1600-h/Principios+de+Enero+08+116.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5152994819672570450" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/R4MdfJwC-lI/AAAAAAAAAWA/EMiYXUGkPQE/s320/Principios+de+Enero+08+116.jpg" border="0" /&gt;&lt;/a&gt; We had a great New Year party, Natalia was a party animal&lt;/div&gt;&lt;br /&gt;&lt;p&gt;&lt;img id="BLOGGER_PHOTO_ID_5152994828262505058" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/R4MdfpwC-mI/AAAAAAAAAWI/A4JKgXSk_DY/s320/Principios+de+Enero+08+111.jpg" border="0" /&gt;&lt;/p&gt;&lt;p&gt;oh! and the food!!! My sis and her husband made a delicious feast: Prime Rib, Ceasar Salad, baby potatoes in butter parsley, cauliflower melt. All I can say is W O W !!!&lt;/p&gt;&lt;img id="BLOGGER_PHOTO_ID_5152996559134325378" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/R4MfEZwC-oI/AAAAAAAAAWY/HMtfqnmnHiU/s320/Principios+de+Enero+08+126.jpg" border="0" /&gt; Sofía, Isabella and Natalia looked adorable posing in their New Year's outfit.&lt;br /&gt;&lt;p&gt;&lt;img id="BLOGGER_PHOTO_ID_5152994815377603138" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/R4Mde5wC-kI/AAAAAAAAAV4/624L6YctIuE/s320/Principios+de+Enero+08+066.jpg" border="0" /&gt;&lt;br /&gt;&lt;/p&gt;&lt;div&gt;I'm going to miss my brother, sister and gang terribly!! &lt;/div&gt;&lt;div&gt; &lt;/div&gt;&lt;div&gt;Sadly things are slowly getting back to normal, my sister &amp;amp; her family have left and now we're left with our normal routine slowly creeping back into space. For us that meant having Natalia's first medical appointment of 2008: she had to have a &lt;a href="http://en.wikipedia.org/wiki/Holter_monitor"&gt;holter monitor &lt;/a&gt;on for 24 hrs after her last ecg came out with some inconsistencies. After her cardiac arrest she had some indication of &lt;a href="http://en.wikipedia.org/wiki/Long_QT_syndrome"&gt;Long QT syndrome &lt;/a&gt;so she's been having ecg's every 6 months but this was the first time we were called in to have the Holter. We went to her Cardio's doctor office and a technician placed the very sticky leads on her, Natalia was a champ, and we were off. No kidding, in &amp;amp; out in 20 minutes!! She had to have her normal activity which now a days is:&lt;/div&gt;&lt;br /&gt;&lt;br /&gt;&lt;img id="BLOGGER_PHOTO_ID_5152998131092355730" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/R4Mgf5wC-pI/AAAAAAAAAWg/bXSZj25W0qQ/s320/Principios+de+Enero+08+147.jpg" border="0" /&gt;&lt;br /&gt;&lt;div&gt;&lt;/div&gt;&lt;p&gt;I have a video I tried to upload but blogger wasn't cooperating, I'll try to post it later, but YEAH!! she's bearing weight and taking tini tiny steps when you hold her!!! We are extremely exited!!&lt;/p&gt;&lt;p&gt;Back to the holter monitor: then I just took the leads off in 24 hrs and have to yet take it back to Cardio. We'll have the results in 7 days.&lt;/p&gt;I still haven't gotten around to thinking about resolutions... maybey I should, like Natalia, just take it a tini tiny step at a time, that's a good resolution!&lt;br /&gt;&lt;br /&gt;&lt;p&gt;&lt;/p&gt;&lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-1062409881881840251?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/1062409881881840251/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=1062409881881840251' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/1062409881881840251'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/1062409881881840251'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2008/01/new-year.html' title='A new year'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/_le43ukemYmw/R4MdfJwC-lI/AAAAAAAAAWA/EMiYXUGkPQE/s72-c/Principios+de+Enero+08+116.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-4560216609997217799</id><published>2007-12-28T22:40:00.000-08:00</published><updated>2007-12-28T23:35:47.383-08:00</updated><title type='text'>In a Nutshell</title><content type='html'>It’s been quite a bit since I’ve posted and so much has been going on, I’ll try my best to update you.&lt;br /&gt;&lt;br /&gt;PART 1&lt;br /&gt;&lt;br /&gt;Late November Natalia was doing awesome, she was mastering sitting w/o support, and this was her favorite activity: Mirror play!!!&lt;br /&gt;&lt;img id="BLOGGER_PHOTO_ID_5149282529114782018" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/R3XtLZwC-UI/AAAAAAAAATg/qC97YNEOjmY/s320/Diciembre+2007+011.jpg" border="0" /&gt;&lt;br /&gt;Then suddenly one day she stopped tolerating her feeds, I slowed her rate down all the way to 40 /hr but she still has ghastly stomach cramps and seemed to be producing A LOT more gas than usual. She would scream in pain and jerk all around, these fits lasted about 40 minutes and I believe that she just got so tired she slept even with the pain.&lt;br /&gt;&lt;br /&gt;After one day of this she got a slight fever, I called her Ped and she told me to go to the ER just to be sure. And, as Murphy ’s Law is, Natalia was fine during the ER stay. She was even LAUGHING!!! I couldn’t belive it. We were there for around 5 hrs and they finally decided to discharge us, I was so frustrated because I knew that she wasn’t all well. When the discharge papers arrived I started to dress Naty to go home before I signed them. And then Natalia started having a fit. I mean, it took 2 nurses to hold her down and she’s tiny!!. Thankfully one of the Doctors was there and saw just how terrible her pain was, they admitted her immediately.&lt;br /&gt;&lt;img id="BLOGGER_PHOTO_ID_5149282537704716626" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/R3XtL5wC-VI/AAAAAAAAATo/0Pz8Mh049cY/s320/Diciembre+2007+001.jpg" border="0" /&gt;&lt;br /&gt;Our hospital stay lasted 1 week; she got better very slowly because this time nobody could, by ANY means, get a line in her tiny veins. All her meds were via gtube. She was very weak but finally after 4 days her blood culture came back negative so the game plan changed and they stared weaning her back to Nutren Jr.. that took another 3 days. In the end we were discharged with her feedings at a very slow rate, no solids and a case of c-diff.&lt;br /&gt;&lt;br /&gt;We had her 15 month well check 1 day after her discharge: 14.7 pounds and 26 inches. This puts her well above the 50th% in the cdls growths charts. &lt;div&gt;&lt;br /&gt;&lt;div&gt;We also had an appointment with her GI doctor, who was happy with Natalia’s recovery but still ordered an upper GI and a swallow test just to double check that her Fundoplacation is holding up consistently. I’m glad she’s having those studies done again since I know how important gastric &amp;amp; swallow issues are with CDLS. These are going to be in Jan 08.&lt;br /&gt;&lt;br /&gt;A week after she was discharged we also had an appointment scheduled with the pulmonologist to try to get the synagis shot for her.. By then Natalia had the sniffles an a slight cough. Everything went great with the pulmonologist, she said her lungs look great but still authorized the synagis. When we asked about the cough she said it was just that: a cough. And just as things usually go: the day after that appointment Natalia started to have this whooping cough that made her cry every single time. This lasted another week, and is finally dying down. She still has a cough, but definitely the worse is over. We can finally both sleep. :)&lt;/div&gt;&lt;br /&gt;&lt;div&gt;PART 2&lt;br /&gt;&lt;br /&gt;MERRY CHRISTMAS!!! &lt;/div&gt;&lt;div&gt;&lt;/div&gt;&lt;img id="BLOGGER_PHOTO_ID_5149283358043470258" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/R3Xt7pwC-bI/AAAAAAAAAUY/SW0ToVS_l4w/s320/Diciembre+2007+086.jpg" border="0" /&gt;&lt;br /&gt;Both my brother and sister came to visit for the holidays. We seldom see each other since one lives in NY and the other lives in Wisconsin. Their presence made this holiday very special. My brother stayed only for a week, he left just before Christmas. I'm glad he and Gaby (his wife) had the chance to get to know Natalia. We're a pretty close knit family and if there is something I would love is for my brother ans sister to know just how lovable and teriffic my baby girl is.&lt;br /&gt;&lt;div&gt;This is my brother Elias and his wife Gaby with Naty in her PJ's&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;img id="BLOGGER_PHOTO_ID_5149282541999683938" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/R3XtMJwC-WI/AAAAAAAAATw/tXv-w5w7bVE/s320/Diciembre+2007+018.jpg" border="0" /&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;My sister is still here with her family, she has adorable twin 4 yr olds who are pure dynamite! They are tons of fun. They love to play and cuddle with Natalia, and she enjoys the atention. I think it's time to think about giving Naty a brother or sister, she enjoys other kids company alot!&lt;/div&gt;&lt;img id="BLOGGER_PHOTO_ID_5149287996608149986" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/R3XyJpwC-eI/AAAAAAAAAUw/CS48YHUo4Zg/s320/Diciembre+2007+073.jpg" border="0" /&gt;&lt;br /&gt;&lt;div&gt;This was Christmas dinner with my parents, my sister Delia with her husband Jafet.&lt;/div&gt;&lt;img id="BLOGGER_PHOTO_ID_5149282546294651250" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/R3XtMZwC-XI/AAAAAAAAAT4/imZ-0KC9Ugg/s320/Diciembre+2007+019.jpg" border="0" /&gt;&lt;br /&gt;Chrismas morning was a whirl, imagine two 4year old opening present and jumping all around, Natalia jus took it all in.&lt;img id="BLOGGER_PHOTO_ID_5149283349453535634" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/R3Xt7JwC-ZI/AAAAAAAAAUI/GJow_KvBhRM/s320/Diciembre+2007+035.jpg" border="0" /&gt;&lt;/div&gt;&lt;br /&gt;&lt;p&gt;Then it was time for her to open her presents, I belive she loved them!!&lt;/p&gt;&lt;p&gt;&lt;img id="BLOGGER_PHOTO_ID_5149287988018215362" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/R3XyJJwC-cI/AAAAAAAAAUg/QhTI9svhVDQ/s320/Diciembre+2007+023.jpg" border="0" /&gt;&lt;/p&gt;&lt;p&gt;&lt;img id="BLOGGER_PHOTO_ID_5149287992313182674" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/R3XyJZwC-dI/AAAAAAAAAUo/Lu54McMgWSs/s320/Diciembre+2007+026.jpg" border="0" /&gt;&lt;/p&gt;&lt;p&gt;&lt;img id="BLOGGER_PHOTO_ID_5149288000903117298" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/R3XyJ5wC-fI/AAAAAAAAAU4/k4OmPlNOczk/s320/Diciembre+2007+047.jpg" border="0" /&gt;&lt;/p&gt;&lt;p&gt;Hope you all had a teriffic Christmas!!!&lt;/p&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-4560216609997217799?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/4560216609997217799/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=4560216609997217799' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/4560216609997217799'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/4560216609997217799'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2007/12/in-nutshell.html' title='In a Nutshell'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://3.bp.blogspot.com/_le43ukemYmw/R3XtLZwC-UI/AAAAAAAAATg/qC97YNEOjmY/s72-c/Diciembre+2007+011.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-8069022646792644552</id><published>2007-12-11T20:01:00.000-08:00</published><updated>2007-12-11T20:12:39.792-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Cornelia de Lange'/><category scheme='http://www.blogger.com/atom/ns#' term='hospital stay'/><title type='text'>We're back!</title><content type='html'>Well, finally life is begginning to be back to normal. Natalia spent a week in the hospital :(  she had a stomach infection. I first noticed her breath started smelling funky, a day after that she started gagging at every meal, and I knew she had some kind of stomach issue because she stopped eating her solids. After a day of gagging and very scary episodes took her to the ER, which means, by my experience, that she is automatically admited. The doctors tend to take everything with Naty with the utmost care because of her medical history: cardiac arrest, pneumonia, c-diff, etc etc.&lt;br /&gt;Juat wanted to touch base with the blog, and I'll soon post some pictures and talk more about this. Darn! i don't even have time to peek at my favorite blogs!&lt;br /&gt;byebye.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-8069022646792644552?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/8069022646792644552/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=8069022646792644552' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/8069022646792644552'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/8069022646792644552'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2007/12/were-back.html' title='We&apos;re back!'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-1133802575238535680</id><published>2007-11-22T21:23:00.000-08:00</published><updated>2007-11-22T22:15:42.761-08:00</updated><title type='text'>ENT &amp; Thanksgiving</title><content type='html'>&lt;div align="center"&gt;Yesterday we had an early ENT appointment to rule out fluid in Natalia's ears. She has another ABR (hearing test) next Dec 3rd after &lt;a href="http://con-santo-y-sena.blogspot.com/2007/09/optimists-creed.html"&gt;the first time &lt;/a&gt;we were sent back and &lt;a href="http://con-santo-y-sena.blogspot.com/2007/09/finaly-abr.html"&gt;the second one&lt;/a&gt; that was canceled because o fluid in her ear. &lt;a href="http://con-santo-y-sena.blogspot.com/2007/09/finaly-abr.html"&gt;&lt;img id="BLOGGER_PHOTO_ID_5135903517910746850" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/R0ZlCdG_xuI/AAAAAAAAAS4/4EKcMr4MQ88/s320/ENT.jpg" border="0" /&gt;&lt;/a&gt;So we are good to go... no more fluid in her ears!!! Now we have to keep her completely sniffle-free until after the ABR.&lt;br /&gt;&lt;a href="http://2.bp.blogspot.com/_le43ukemYmw/R0ZlCtG_xvI/AAAAAAAAATA/9I3krX2ZVoY/s1600-h/calientita+ent+office.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5135903522205714162" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/R0ZlCtG_xvI/AAAAAAAAATA/9I3krX2ZVoY/s320/calientita+ent+office.jpg" border="0" /&gt;&lt;/a&gt;Natalia was in an excelent mood, "talking" all the way home. When we got home she became vey entertained with her activity block (thanks Clari!). I'm thrilled that she's having fun with it now, she feels like such a big girl when she's sitting alone playing. &lt;/div&gt;&lt;div align="center"&gt;&lt;a href="http://2.bp.blogspot.com/_le43ukemYmw/R0ZlDtG_xwI/AAAAAAAAATI/7PIzn3PHkQs/s1600-h/JUGANDO+ACTIVITY+BLOCK.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5135903539385583362" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/R0ZlDtG_xwI/AAAAAAAAATI/7PIzn3PHkQs/s320/JUGANDO+ACTIVITY+BLOCK.jpg" border="0" /&gt;&lt;/a&gt; We are planning on having a quiet Thanksgiving at home. But that's no excuse not to dress up...&lt;a href="http://3.bp.blogspot.com/_le43ukemYmw/R0ZlD9G_xxI/AAAAAAAAATQ/ujggjF87ZcM/s1600-h/jean+dress.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5135903543680550674" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/R0ZlD9G_xxI/AAAAAAAAATQ/ujggjF87ZcM/s320/jean+dress.jpg" border="0" /&gt;&lt;/a&gt; Happy Thanksgiving everyone!&lt;br /&gt;&lt;a href="http://4.bp.blogspot.com/_le43ukemYmw/R0ZlFNG_xyI/AAAAAAAAATY/y7To8FYRi3s/s1600-h/posing+jean+dress.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5135903565155387170" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/R0ZlFNG_xyI/AAAAAAAAATY/y7To8FYRi3s/s320/posing+jean+dress.jpg" border="0" /&gt;&lt;/a&gt; &lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-1133802575238535680?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/1133802575238535680/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=1133802575238535680' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/1133802575238535680'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/1133802575238535680'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2007/11/ent-thanksgiving.html' title='ENT &amp; Thanksgiving'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://1.bp.blogspot.com/_le43ukemYmw/R0ZlCdG_xuI/AAAAAAAAAS4/4EKcMr4MQ88/s72-c/ENT.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-8881227546221102625</id><published>2007-11-17T22:58:00.000-08:00</published><updated>2007-11-18T07:52:14.631-08:00</updated><title type='text'>Just us girls</title><content type='html'>&lt;div align="justify"&gt;Today Natalia and I had a relaxing, mellow day. We're home alone until tomorrow so we made the best of our quality time. During week days I see Nati just a few hours a day because of work so I miss her daily rutine. But today, even though we didn't leave the house, it was great to have her all to myself.&lt;/div&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;div align="center"&gt;First we watched Baby Einstein videos&lt;br /&gt;&lt;img id="BLOGGER_PHOTO_ID_5134078307133802146" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/Rz_pBNG_xqI/AAAAAAAAASY/BL_c0VlrT2Y/s320/sentada+en+su+silla+de+jugar.jpg" border="0" /&gt;&lt;/div&gt;&lt;br /&gt;&lt;br /&gt;&lt;div align="center"&gt;I'm soooo proud, she's doing so well with her sitting&lt;img id="BLOGGER_PHOTO_ID_5134078315723736770" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/Rz_pBtG_xsI/AAAAAAAAASo/C4y8jYrfmmw/s320/sentada+solita.jpg" border="0" /&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;aaaaahhhhhh.....&lt;img id="BLOGGER_PHOTO_ID_5134078311428769458" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/Rz_pBdG_xrI/AAAAAAAAASg/pOLCXeepzUs/s320/ba%C3%B1andose.jpg" border="0" /&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;an early dinner, yummy!&lt;/div&gt;&lt;img id="BLOGGER_PHOTO_ID_5134078298543867538" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/Rz_pAtG_xpI/AAAAAAAAASQ/s7zN8QmPc-c/s320/comiendo.jpg" border="0" /&gt;&lt;br /&gt;&lt;br /&gt;&lt;div align="center"&gt;...it's all in a day's work!&lt;/div&gt;&lt;img id="BLOGGER_PHOTO_ID_5134082043755349714" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/Rz_satG_xtI/AAAAAAAAASw/y3qoQ3DMhrg/s320/momir.jpg" border="0" /&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-8881227546221102625?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/8881227546221102625/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=8881227546221102625' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/8881227546221102625'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/8881227546221102625'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2007/11/just-us-girls.html' title='Just us girls'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://1.bp.blogspot.com/_le43ukemYmw/Rz_pBNG_xqI/AAAAAAAAASY/BL_c0VlrT2Y/s72-c/sentada+en+su+silla+de+jugar.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-5469638901679111767</id><published>2007-11-15T21:56:00.000-08:00</published><updated>2007-11-16T07:00:02.737-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='bebe'/><category scheme='http://www.blogger.com/atom/ns#' term='goofin around'/><title type='text'>Taaa Daaa!!!</title><content type='html'>I'm thrilled, after almost 2 months we FINALLY have a new camera!! Here are the first pictures, don't expect too much, it was late but I couldn't wait to try out my new toy. : )&lt;br /&gt;&lt;br /&gt;&lt;p&gt;&lt;img id="BLOGGER_PHOTO_ID_5133318712102733394" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/Rz02K9G_xlI/AAAAAAAAARw/ULPZDv4blns/s320/cargada+1.jpg" border="0" /&gt;&lt;/p&gt;&lt;br /&gt;&lt;p align="center"&gt;This is Natalia's "I don't care if I have crazy hair, don't brush my hair" hair.&lt;img id="BLOGGER_PHOTO_ID_5133318716397700706" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/Rz02LNG_xmI/AAAAAAAAAR4/sBI967xp7Sc/s320/closeup.jpg" border="0" /&gt;&lt;br /&gt;I know, this crib would probably be banned for overstimulation, but Natalia likes to have variety, and I'd do anything to get her to fall asleep late in the evening.&lt;/p&gt;&lt;img id="BLOGGER_PHOTO_ID_5133321499536508546" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/Rz04tNG_xoI/AAAAAAAAASI/4Jzlk0x8ueg/s320/cuna+y+juguetes.jpg" border="0" /&gt;&lt;br /&gt;&lt;p&gt;I'm planning a fotoshoot this weekend, I'll post them by Tuesday. Have a great weekend!! &lt;/p&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-5469638901679111767?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/5469638901679111767/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=5469638901679111767' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/5469638901679111767'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/5469638901679111767'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2007/11/taaa-daaa.html' title='Taaa Daaa!!!'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://2.bp.blogspot.com/_le43ukemYmw/Rz02K9G_xlI/AAAAAAAAARw/ULPZDv4blns/s72-c/cargada+1.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-3207080052000195699</id><published>2007-11-04T22:01:00.000-08:00</published><updated>2007-11-04T22:52:50.039-08:00</updated><title type='text'>Some old, some new</title><content type='html'>Good news from Amazon: I just got my refund in so we'll be getting a new camera any time soon.I really want to share her pumpkin pictures but I haven't received the pictures from my friends who're supposed to send them (hint hint). Here are some pictures from last year. I'm glad this year Nati did enjoy herself, mabey I was able to erase last years traumatic Halloween experience...&lt;br /&gt;&lt;br /&gt;&lt;div align="center"&gt;Everything started ok, she was placidly sleeping until...&lt;/div&gt;&lt;img id="BLOGGER_PHOTO_ID_5129238232088577138" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/_le43ukemYmw/Ry62_wf-BHI/AAAAAAAAARI/qYFYz-E7uso/s320/Natalia+204.jpg" border="0" /&gt;&lt;br /&gt;&lt;div align="center"&gt;Mom decided it was time to dress up as a WILD CAT (costume courtesy of Aunt Delia). &lt;/div&gt;&lt;div align="center"&gt;Then all hell broke loose!!&lt;br /&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;img id="BLOGGER_PHOTO_ID_5129238240678511746" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/Ry63AQf-BII/AAAAAAAAARQ/pY1jB_xn5xE/s320/Natalia+235.jpg" border="0" /&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;/div&gt;&lt;div align="center"&gt;Here's a closer look, this 2 month old was WAILING!!&lt;/div&gt;&lt;div align="center"&gt;&lt;img id="BLOGGER_PHOTO_ID_5129238240678511762" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://4.bp.blogspot.com/_le43ukemYmw/Ry63AQf-BJI/AAAAAAAAARY/Vg76tHBNO-o/s320/Natalia+237.jpg" border="0" /&gt;&lt;/div&gt;&lt;div align="center"&gt;Not even her friends could make her stop&lt;/div&gt;&lt;div align="center"&gt;&lt;img id="BLOGGER_PHOTO_ID_5129238244973479074" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/Ry63Agf-BKI/AAAAAAAAARg/ap5fUOcE4g8/s320/Natalia+231.jpg" border="0" /&gt;&lt;/div&gt;&lt;div align="center"&gt;OFCOURSE!!! She hates hats! After we took her wild cat ears off she was good to go. And fell sound asleep.&lt;/div&gt;&lt;div align="center"&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;img id="BLOGGER_PHOTO_ID_5129238244973479090" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/Ry63Agf-BLI/AAAAAAAAARo/RaB0ixyUlv0/s320/Natalia+239.jpg" border="0" /&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;/div&gt;&lt;div align="left"&gt;Can you tell how tiny she was? That costume was size 1 preemie from preemie.com. Take another look at the first picture, that bib was normal size and looks huge on her.&lt;/div&gt;&lt;div align="left"&gt;&lt;/div&gt;&lt;div align="left"&gt;Here are a few pictures my father took of Natalia this weekend, please excuse the poor quality, they're from a phone camera. &lt;a href="http://3.bp.blogspot.com/_le43ukemYmw/Ry6zCAf-BEI/AAAAAAAAAQw/ecvdcth6Nys/s1600-h/mail3.jpg"&gt;&lt;/div&gt;&lt;/a&gt;&lt;img id="BLOGGER_PHOTO_ID_5129233872696771650" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://3.bp.blogspot.com/_le43ukemYmw/Ry6zCAf-BEI/AAAAAAAAAQw/ecvdcth6Nys/s320/mail3.jpg" border="0" /&gt; &lt;a href="http://3.bp.blogspot.com/_le43ukemYmw/Ry6zCAf-BEI/AAAAAAAAAQw/ecvdcth6Nys/s1600-h/mail3.jpg"&gt;&lt;p align="center"&gt;&lt;/a&gt;Big smile for the camera... I mean phone&lt;br /&gt;&lt;/p&gt;&lt;a href="http://1.bp.blogspot.com/_le43ukemYmw/Ry6zCgf-BFI/AAAAAAAAAQ4/NAYxG4180BI/s1600-h/mail.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5129233881286706258" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/Ry6zCgf-BFI/AAAAAAAAAQ4/NAYxG4180BI/s320/mail.jpg" border="0" /&gt; &lt;p align="center"&gt;&lt;/a&gt;&lt;/p&gt;Although it seems she's bored out of her wits, take my word for it, she was having a blast. hehe&lt;br /&gt;&lt;a href="http://1.bp.blogspot.com/_le43ukemYmw/Ry6zCgf-BGI/AAAAAAAAARA/5vjVq5nAVGY/s1600-h/mail13.jpg"&gt;&lt;img id="BLOGGER_PHOTO_ID_5129233881286706274" style="DISPLAY: block; MARGIN: 0px auto 10px; CURSOR: hand; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_le43ukemYmw/Ry6zCgf-BGI/AAAAAAAAARA/5vjVq5nAVGY/s320/mail13.jpg" border="0" /&gt;&lt;/a&gt;I think she prefers to pose for a real camera.&lt;br /&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;/div&gt;Hope your Halloween was fun. ;)&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;br /&gt;&lt;/div&gt;&lt;br /&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;br /&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;br /&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-3207080052000195699?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/3207080052000195699/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=3207080052000195699' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/3207080052000195699'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/3207080052000195699'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2007/11/some-old-some-new.html' title='Some old, some new'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://2.bp.blogspot.com/_le43ukemYmw/Ry62_wf-BHI/AAAAAAAAARI/qYFYz-E7uso/s72-c/Natalia+204.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-3439093116223778981</id><published>2007-10-25T12:32:00.000-07:00</published><updated>2007-10-25T12:54:27.094-07:00</updated><title type='text'>All's clear</title><content type='html'>Well, the smoke is almost clear. Thankfully the fire was contained in time and it didn't get to any of my neighborhood's homes. We were lucky, but an estimated 1500 homes did burn down.  I feel for  these families loss. I feel even more for the family of the 4 people who lost their lives in these fires. I'm so thankful for my county's organization in crisis, San Diego really did come together. Most of all I'm thankful the worse is over.&lt;br /&gt;&lt;br /&gt;Natalia literary didn't see the light of day during the worse of the fires. Our home was closed down: No windows were opened, only the garage door was opened as needed to go for supplies. We put wet towels under the door so the smoke couldn't get in and made sure the AC's filter was clean.  So many of my friends kids got sick, even though they used face masks so  I was extra careful.   Our effort payed off because Naty didn't get sick, not even a sniffle. :-)&lt;br /&gt;&lt;br /&gt;Oh, and we bought a new camera an Amazon but decided to return it after reading a bunch of bad press on a a faulty lens E18 error that isn't covered by the warranty. Sorry... the pictures are still on standby.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-3439093116223778981?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/3439093116223778981/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=3439093116223778981' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/3439093116223778981'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/3439093116223778981'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2007/10/alls-clear.html' title='All&apos;s clear'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-3391902601279420388</id><published>2007-10-22T17:23:00.000-07:00</published><updated>2007-10-23T07:18:23.556-07:00</updated><title type='text'>Fire!</title><content type='html'>&lt;div&gt;&lt;a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://media.signonsandiego.com/fires/"&gt;&lt;/a&gt;&lt;/div&gt;&lt;div&gt;These are scary times. We live very near the Harris Fire in San Diego. A few of the neighboring areas have issued voluntary evacuations. A bunch of roads are closed near our house and the smoke is getting really bad.  It really hits you when you start getting phone calls from out of state fiends to ask how you are. We're glued to the TV or in my case the web. These darn Santa Ana winds are moving these fires quickly. I'm hoping for the best... keep us in your prayers.&lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-3391902601279420388?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/3391902601279420388/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=3391902601279420388' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/3391902601279420388'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/3391902601279420388'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2007/10/fire.html' title='Fire!'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-9058393457828907173.post-6139357678633235000</id><published>2007-10-20T17:40:00.000-07:00</published><updated>2007-10-20T17:52:25.476-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='special needs'/><category scheme='http://www.blogger.com/atom/ns#' term='Cornelia de Lange'/><category scheme='http://www.blogger.com/atom/ns#' term='CdLS'/><title type='text'>Less is more</title><content type='html'>&lt;span style="font-family:arial;color:#660000;"&gt;Yesterday was the first time a doctor has told us we don't need a follow up appointment. :)  It was time for Natalia's 6 month check up with her Urologist so she had 2 studies done to see if there was still reflux from her bladder to her left kidney and guess what: NO MORE REFLUX!!!  She'd been on Septra since birth to prevent any UTI's, but tonight, for the first time in her life she's not going to take it. We couldn't be happier. Oh, and btw she was 13lbs 6 oz , no wonder my arms ache...&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/9058393457828907173-6139357678633235000?l=con-santo-y-sena.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://con-santo-y-sena.blogspot.com/feeds/6139357678633235000/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=9058393457828907173&amp;postID=6139357678633235000' title='6 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/6139357678633235000'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9058393457828907173/posts/default/6139357678633235000'/><link rel='alternate' type='text/html' href='http://con-santo-y-sena.blogspot.com/2007/10/less-is-more.html' title='Less is more'/><author><name>Sonia</name><uri>http://www.blogger.com/profile/06376622765575476877</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='10376630346507934513'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>6</thr:total></entry></feed>