Caregivers Community Blog

Spa Offers Support For Caregivers

2008-08-19T09:24:00.003-04:00

If you're in North Illinois, check out this opportunity to gather information and pamper yourself a bit!

"Caring for a loved one can not only be a physical challenge for some, but for others stressful as well. And as family members strive to provide quality care for their loved ones, they may find themselves overwhelmed, stressed and frustrated.

Educating family caregivers and helping them maintain their own health as they care for others is the focus behind the sixth annual Spa for the Caregiver’s Spirit on Sept. 11, from 2:30 to 7:30 p.m. at Pleasant Hill Baptist Church, 19479 North Illinois 37, according to caregiver advisor Darcy Markwell."

To register for the Spa for the Caregiver’s Spirit, or for more information, you may contact Darcy Markwell at (888) 560-8805, Ext. 1062.

2008 National Caregivers Conference

2008-08-18T13:40:00.003-04:00

The 2008 National Caregivers Conference has been scheduled!

When: Wednesday, October 29th, 2008
Where: Woodbridge Hotel and Conference Center Formerly the Sheraton at Woodbridge Place, Iselin, New Jersey

From the website:
Our conference will concentrate on the critical importance of caregivers. This year, we are coordinating a conference that will direct caregivers towards information on easily accessible, cost effective supports to all populations, regardless of age or disability. Knowledge of available resources can help to alleviate the stress associated with caregiving, sustain families and marriages, improve caregivers’ health and well being, reduce the risk of abuse and neglect, and minimize or delay the need for more costly out-of-home placement.

Info & Registration info here: http://www.nationalcaregiversconference.com/

Change of focus of this blog

2008-08-18T13:34:00.002-04:00

Hi All!
Well, it has been a while, and I want to apologize, but I hope to do better.

I have decided to change the focus of this blog a bit.

While I'll probably still use it to "vent" a bit ;-) I'm also going to try & make it a source of general Family Caregiving info & links that you can use right away.

So look for some links & info to be coming your way more frequently!

Have a great day!

Peace!

Liz

Suzanne Mintz on NPR tomorrow (1/30/08)

2008-01-29T17:08:00.000-05:00

I just got this message from NFCA:

******************************
Dear NFCA Members and Friends

Tomorrow (Wednesday, January 30) please listen to National Public Radio's Fresh Air with Terry Gross. Terry will be interviewing Suzanne Mintz, president and co-founder of the National Family Caregivers Association about family caregivers in America today, her personal experiences as a family caregiver and her new book, A Family Caregiver Speaks Up: It doesn't have to be this hard. This Peabody Award program is one of public radio's most popular programs. Each week, nearly 4.5 million people listen to the show's intimate conversations broadcast on more than 450 National Public Radio (NPR) stations across the country, as well as in Europe on the World Radio Network.

Please check your local National Public Radio listings to find out when Fresh Air is scheduled to run in your area. You can also listen to the program live, on line tomorrow after 2 p.m. ET here: http://m1e.net/c?48248349-FN1TgLupCUHTc%403069901-vjt6gEEaVNulo. The interview with Suzanne will then be archived on the web site for you to listen at any time by looking up the January 30, 2008 program.

We are excited that this program coincides with the beginning of NFCA's 15th Anniversary celebration. During the program, Suzanne Mintz speaks up for family caregivers which is what we are encouraging all family caregivers to do this year. It is our hope that after listening to this program you will be inspired to Speak Up for:
· Your own needs as a family caregiver
· The needs of your loved one
· The rights of all family caregivers
To learn more about NFCA, the new book and how family caregivers can become part of NFCA's Family Caregiver Community for FREE please visit http://m1e.net/c?48248349-IgXL9hSTpKGkk%403069902-F9AfznIFZ9eLw today.

Don't forget, tune in to NPR's Fresh Air with Terry Gross and Suzanne Mintz TOMORROW or find it on line at http://www.npr.org/templates/rundowns/rundown.php?prgId=13.

*******************************************

I'll be listening!

Liz

A Less-Stressed Holiday

2007-12-14T16:42:00.000-05:00

OK...I admit it...I have done NO Christmas shopping...none...zip...nada....
My Christmas card boxes are neatly stacked....in the closet...
My catalogs have been recycled.....

This year, I just can't deal....it seems to me that the holidays just appeared out of nowhere! Didn't we just pass July 4th!!!

My regular job has been really busy, which I'm eternally grateful for, but between that and caring for Maman who is failing, I just feel as if Christmas just came TOO fast!

Anyway, I just found a link which might help.
If you're in the same boat I am, check out the Strength for Caring site for ideas.

Strength for Caring Holiday Ideas

At this point I can use all the help I can get!

HAPPY HOLIDAYS!!!!

Liz

Family Caregivers on NBC's Today Show!

2007-11-26T08:18:00.000-05:00

Hi All!
I hope you all had as peaceful a Thanksgiving as possible!
The media is starting to take notice (about time! ;-) of the work that Family Caregivers do!
Last Wdnesday (right before Thanksgiving) Suzanne Mintz, President of NFCA was interviewed, along with Family Caregiver to his wife, Rick King.

Check out the video below!

He cared for his wife till the end

Have a great day!

Liz

Next Phase

2007-07-03T05:05:00.000-04:00

Well...we reached another phase this weekend.
We got Maman a hospital bed. Yep.
I had frankly resisted this for a while, but we were offered one from my sister-in-law who had bought it for my father-in-law before he passed away.
It's actually a great bed, and Maman likes it, so that's good.
It goes up and down. the head and knees both come up, and it has rails...everything you need to keep your 90 year old mother from trying to get out of bed on her own! ;-)

Take care!

Liz

Pacing yourself

2007-06-29T14:32:00.001-04:00

So...have you ever had someone say to you:
"You really need to take time for yourself"
Yeah, right....well, they're right!
I know, I know...it's hard enough being a caregiver without taking the extra time to carve out time for yourself...but it's worth it.
I'm actually taking a day & going away with my husband tonight.
Yep, it's only a day, but even THAT is a break.

There's NO WAY to pace your self with caregiving.
Pacing yourself implies that you know where/when the end of the race is.
As caregivers we don't know when it will end.
For some it's a sprint, for others (like yours truly!) it's a marathon.

But finding even a few minutes...hey even if you have to lock yourself in the bathroom! ;-)...to be by yourself or with someone you like spending time with, it's worth it....OK, the bathroom analogy can be taken a few ways from here...I'll leave it to you! ;-)

oh...and yeah, my "52 Fun Feats for Caregivers" e-book is chock full of great ideas! ;-)

Really....don't try & "pace yourself" just do something nice for yourself...your caregiving duties will be there when you get back!

Peace!

Liz

NFCA on YouTube!

2007-06-05T00:44:00.001-04:00

Suzanne Mintz, the President of NFCA has a great video on YouTube, check it out!

If you can't see the video here, go to:
http://youtube.com/watch?v=ncjR_uHxbDc

Enjoy!

Liz

...and the fun continues....

2007-05-26T12:46:00.000-04:00

WOW..it has been a while since I posted...I'm sorry about that!...but Caregiving gets in the way of blogging!
As an update....PT went REALLY well...I'm actually in better shape than I was before I bulged-out my disks. I was given some great exercises to do by my Physical Therapist..and What a Concept! I'm actually keeping up with them!

But things with Mom have been a challenge...
In Monday May 14th she decided to try & get out of bed by herself ....not a smart move considering she's paralysed on her right side and is 1 week from turning 90.... Result? Free ambulance ride to the ER....after 4 hours of waiting (ONLY four hours!)...X-rays show a non-displaced fracture of her right shoulder....and she was sent home! I love our health care system....she's in a sling for the next 4 weeks....Orthopedist was seen...had to have a CAT scan done to confirm the x-rays (they were confirmed!)....rails now on her bed...Thank goodness for small favors in that it's her disabled side so she still has use of her "good" left arm.....

Bottom line: transferring is even more of a challenge with this...well...actually EVERYTHING is more of a challenge with this!

The lesson...remember that with Caregiving, things can change in an instant.

I was interviewed for the next issue of TAKE CARE!, the National Family Caregiver's Association newsletter (free to Family Caregivers by the way! go to http://www.thefamilycaregiver.org to sign up for it) and I had just told the reporter that with caregiving, you always have to plan ahead, but then be ready to have those plans change!....Fun, huh! ;-)

Anyway, I plan on getting back to updating on a more regular basis...but then again...plans can always change!....

Hang in there!

Liz

Happy Thanksgiving

2006-11-23T08:50:00.000-05:00

It's Thanksgiving here in the U.S.
I'd like to take a moment to thank all the Caregivers who have become a part of Caregivers Community and who have been so supportive of me and of each other.

We all need friends who understand what we are going through as Family Caregivers and I am eternally thankful for all of you.

For those of you who are celebrating today, remember to breath and take a break when you can! Ask for help, and accept it when it's offered!

Know that those you care for are thankful for you (Even if they don't always show it!).

So: Happy Turkey Day to all!...I'm off to mash potatoes! (My husband is peeling!)

Liz

The PT Parade!

2006-11-13T17:13:00.000-05:00

Well, PT had started....and boy am I sore!
I have a bunch of home exercises to do...as well as my "normal" caregiving duties to continue.

It's interesting that when my back went out, people told me to "be careful."
Yeah....I'll try, but I still need to get Maman in & out of bed, take her to the bathroom, boost her up in her wheel chair, etc, etc....and I don't always have help available.

So....a caregiver's work is never done! (Although I do thank goodness have some help during the weekdays!)

So, you get hurt, you start to heal & you go on....yep...life as a caregiver! ;-)

Till next time, Peace!

Liz

The Physical Toll of Caregiving

2006-11-09T12:43:00.000-05:00

It started routinely enough...

Last Sunday I was boosting Maman up in her wheelchair...and then I proceeded to fall to the floor in pain....It took me 15 minutes to get up off the floor, and that only with the help of my husband.

I had to call a friend to get Maman into bed that night because I could barely move.

An MRI a few days later showed that I now have 2 bulging disks in my lower back (between L3/L4 & L4/L5 for you medical types!). Frankly this really sucks.

I was put on 3 different meds which I stopped 6 days later because of the side effects, so now it's up to me to manage the pain...all while dealing with the reality of still having to care for Maman.

Have you ever noticed that as a caregiver, people tell you to "be careful?" Well, yeah, I'm trying, but the reality is that Maman still needs care & I ned to keep living my life...so I just take it one day at a time...and a glass of wine with dinner (now that I'm off the meds! ;-)

I start PT today...we'll see how much that helps...

How have you dealt with the the physical toll of Caregiving?

Welcome!

2006-11-07T16:32:00.000-05:00

Hi!
Welcome to the Caregivers Community Blog! If you've come here from my website www.caregiverscommunity.com, GREAT! If you found me another way, awesome! I'm glad you're here!

I've been a Family Caregiver for almost 12 years...November 17th will mark the 12 year anniversary of my mom's hemorrhagic stroke. She's been in a Wheelchair since. Then, within a year of Maman's stroke (OK...Just so you know "Maman" is French for Mom & that's what I call her..."Mom" just doesn't fit! ;-) Papa (aka: Dad) was diagnosed with Alzheimer's....You can get all the gory details...OK not really gory...just long winded...At http://www.caregiverscommunity.com/aboutus.html
Grab a cup of coffee, or a bottle of wine, and stay a while!

Anyway, this will be the place that I'll be venting, asking for input and hopefully sharing some useful info & insights for family caregivers anywhere/everywhere!

So, welcome! And let me know what you'd like to talk about!

Liz