Cleft Club Radio - podcast for cleft lip & palate community

Special Announcement

2007-10-23T01:22:00.000-04:00

Where did I go? Listen to find out. And no I have not given up on podcasting! :) Be sure to visit SmilePodcastNetwork.com

Listen/Download episode here

Cleft Club Radio - Nov. 23, 2005 - Short show to say hello and more shows will be coming

2005-11-23T16:27:00.000-05:00

Download/Listen here!

Hello everyone. This episode is really short, it's just a shout out to say that yes I'm still here :). Had some life complications but I think things have settled down enough where I can get back into the swing of things.

On this episode, I hint towards an interview I did and hope to put on a future episode. I also do a short interview with Kristi, and I mention me possibly doing a personal podcast where I would be talking about my other intertersts and where I'll be doing future interviews with my daughter.

Next one will be a full, regular show :)

August 4, 2005 - Ep 3 - Cleft Club Radio - 3 - ICE on cell phone, interview with Kristi, The Kite Runner, Rhinoplasty, and news

2005-08-04T16:22:00.000-04:00

Cleft Club Radio
August 4, 2005
Episode #3

Download it here

Apology for no show last week, was sick :(

ICEing your cell phone
- Some warm up to cell phone ICE
- Not directly cleft related but handy in case of emergency

Interview with my daughter Kristi. Talk about starting first grade and watching Charlie and the Chocalate Factory (a little scary but very funny)

Rhinoplasty - what is it?
- CLP Link Directory link
- Personal Experience Database link - add your story!

The Kite Runner by Khaled Hossein
- About a friendship of two boys. Amir, son of wealthy father, other is Hassan, son of Amir’s servant, and was born with a cleft lip.
- Takes place from the 1970s to present day in Afganistan.
- Published in 2003, was #1 NYT’s Best Sellers List
- Can buy it here

News
“1 Hit of Meth Is Too Much in Pregnancy”
WebMD Medical News
Low doses of methamphetamine is found to increase chance of birth defects, as little as one use

“Ailing boy has determined friends in Tier”
TamilCanadian
11 yr old Pirabu from Sri Lanka, survivor of the tsunami, lost his father in the massive storm, and lives with his mother in a refugee camp. Health care workers are trying to get him to have surgery done on his cleft palate. Without it, he is a higher risk to infection and bad nutrition

No new pictures this time. Check out pictures already added and find out how you can add your own by clicking here!

By the way, if you use Odeo to subscribe to CCR, you can go to my Odeo Channel (odeo/72319f3138af4f27).

Until next time...

Cleft Club Radio - Episode 2 - new subscription feed, world news, being a parent who was born cleft, Harry Potter, and site updates

2005-07-21T15:25:00.000-04:00

Download show here

Welcome to Cleft Club Radio
Today is July 21, 2005
I’m your host Kim Andrews

(theme song)

Welcome back to the second episode of CCR. Thanks for the positive comments about the first show!

- We now have a link you can use to subscribe with or listen to on the web. The address is http://feeds.feedburner.com/CleftClubRadio . Can still download shows there as well as the downloads section at cleftclub.com

- Put up shownotes for the first show! Click here

- Definition: Shownotes are an outline of what happens in each episode.

- 31 subscribers! Whoa! It was 16 when I started to get the show read on Wednesday and doubles in a few hours. Cool! Welcome to all the new subscribers!

- Wrote up a FAQ on CCR. Can be found in the FAQ section.

- Got a number of people wanting to subscribe to the mailing lists. Excellent! A few didn’t give reasons to why. Must give reason why you want to join, helps keep out spammers and email harvesting bots that collect emails for spammers.

News on the world

- From the New Straits Times
"99pc success rate in cleft lip, palate operations" story link
director of a cleft clinic Hospital Universiti Sains Malaysia reports that they have been successful in treating patients at a young age and also have them go through rehabilitation and therapy.

- From Canada.com
Formerly conjoined twins headed home story link
conjoined twins who were also born with a cleft lip and palate from Zimbabwe Africa were flown in to Canada. Delivered at a salvation army hospital, operated on at the Hospital for Sick Children in Toronto
sent home on Wed. Keep beating the odds kids! Best of luck to the family!

- Channel 13, WHAM in Rochester NY
"Operation Smile Has No Borders" story link
19 year old Mungamba Vunda from the African Congo has an operation done on his lip by Dr. Lawrence Kurtzman through Operation Smile (www.operationsmile.com) .
includes a video link

- Black Mountain News from Black Mountain, NC
“Shriners help local child overcome facial disfigurement” story link
story of the Reese family, Noah, 8 who was born with a cleft lip and palate and was operated on by both operation Smile and the Shriner Hospital in Boston
father David, also born with a cleft and shares his fears about passing it on.

Another interview with my daughter Kristi

Commentary - Being a parent who was born cleft and why that didn't bother me
Commentary #2 - Harry Potter controversy over the "H" word (harelip) in "Chamber of Secrets" (will link to my article later)

New additions to the Photo Gallery
- Nursey007's daughter Rachel

Ending

[Remember that I am not a medical professional so anything you hear on Cleft Club Radio is for informational purposes only! Thanks! :)]

First podcast! Cleft Club Radio - July 15, 2005

2005-07-14T15:24:00.000-04:00

Here's the first podcast for Cleft Club Radio!

Click here to download and listen

Running Time: 17:50

Here's what's talked about:

Recorded July 15, 2005

- Intro to the show (you can hear my daughter in the background at times)

- short intro about who I am

- interview with my 6 year old daughter Kristina who wanted to say hello (lol)

- this show is just for informational use, not to be taken as medical advice. Please consult your doctor/cleft team.

- I talk about what "cleft", "cleft lip", and "cleft palate" means, and the difference between unilateral and bilateral cleft lips and palates.

- description of CleftClub.com. Archives of the old Cleft Club at Yahoo Clubs, you can visit here. To see what is looks like now visit here (no longer posted to, but you can read the posts)

- Photo Gallery and how to add your pictures

- the Personal Experience Database and how to have your personal story read on a future show.

- how to join the mailing lists (main group, teens, adults, parents) of the club.

- send in news and events you want to share on the air! Email me at calvero@cleftclub.org

The rockin' theme song is "Almost Everything" by Uma Floresta :).

Kim