tag:blogger.com,1999:blog-113032282009-03-02T13:22:32.221-08:00Carcinoid CentralFrom Central Pennsylvania: A gathering place for information related to carcinoid cancer and related neuroendocrine cancers, specific to Pennsylvania.Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.comBlogger54125tag:blogger.com,1999:blog-11303228.post-35335373678128085092009-01-15T13:04:00.000-08:002009-01-15T13:18:44.494-08:00Coffee & Conversation: February 8th in HarrisburgHappy New Year!<br /><br />We are starting off the New Year with a Conversation and Coffee at the Linglestown St. Thomas Roasters (5951 Linglestown Rd, Harrisburg). Held from 2 - 4 PM on Sunday, February 8th, this event provides a relaxed setting to talk with other patients about living with the challenge of carcinoid cancer and related Neuroendocrine Cancers.<br /><br />Also, please see our <a href="http://www.pccan.net/index_files/Page598.htm">2009 calendar</a> of events posted at PCCAN.net. You will see that we've added some Coffee &amp; Conversations in a number of new locations around the state. Please contact me if you are interested in participating and if you'd like to arrange one near you.<br /><br />Teresa<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-3533537367812808509?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-4783500040482964112008-11-19T09:42:00.000-08:002008-11-19T09:44:25.064-08:00Governor Rendell & Awareness OpportunityWhat I had previously referred to as a press conference with Governor Rendell turned out to be the taping of the WITF-PBS show Smart Talk with Governor Rendell as the guest. David Botero, along with Kevin Gibson (you’ll remember them both from the Hope in Handball fundraiser last year) were instrumental in orchestrating our presence at the taping. David and Kevin along with Lucille, Vicki &amp; Rob, Jeff and I were members of the audience. <br /><br />Although we were unable to make our presence known in the show, we were able to talk to many of the WITF staff, other members of the audience and pass out information, pins, and bracelets. Several of us were able to have brief conversations with Governor Rendell and give him the material as well. Hopefully we have planted a seed that will grow into even greater opportunities for creating awareness about carcinoid/NET cancers. <br /><br />Many thanks to David and Kevin for their continued efforts to create awareness and bring attention to our cause and to Lucille, Vicki &amp; Rob, and Jeff for being willing to join us with just a half days notice.<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-478350004048296411?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-4513747978853141672008-11-17T08:07:00.000-08:002008-11-17T08:12:16.199-08:00Tragic Event Creates Awareness Opportunity in the MediaThe state of Pennsylvania is morning the loss of the Lt. Governor, Catherine Baker Knoll. It is well known that her death was the result of complications from treatment of a neuroendocrine cancer, although as far as I am aware the specific type of neuroendocrine has not been reported. While being respectful of Baker Knoll’s family’s wishes to keep the specifics of her disease private and being respectful of the fact that they are mourning the loss of a loved one, we can use this sad occasion as an opportunity to create awareness of carcinoid/NET cancers.<br /><br />Please join me in efforts to bring awareness of carcinoid/NET cancers and the need for proper treatment diagnosis and monitoring by bringing attention to any misinformation you see or hear and using it as a catalyst for spreading accurate information. This morning I came across a news article, prompted by the death of Baker Knoll that presented inaccurate information about carcinoid/NETs, including misinformation quoted by a doctor. I wrote to the reporter, bringing the misinformation to her attention and expressing that it is because of such information that the seriousness of carcinoid/NET cancers are dismissed and that some patients suffer unnecessarily and die prematurely.<br /><br />If you come across information that is incorrect but don’t personally want to respond, bring it to the list’s attention so someone else can. If you like to write, consider writing a letter to the editor of your local paper. If in your letter you reference an article about Baker Knoll’s death that was already run you improve your chances of being published. Check the paper for the guidelines about submitting letters. (And, if you are like me you may need to curb the urge to express your anger about the situation since the information will be better received if it comes through in a kind tone.)<br /><br />We as patients can make a difference, not only for ourselves but also for the next generation of patients diagnosed with a carcinoid/NET cancer. Let’s seize the opportunities to education the public and medical community—even if it is one doctor or one person at a time, it is worth it if it helps one person be diagnosed earlier or treated properly.<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-451374797885314167?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-11061305664858659792008-10-23T07:50:00.000-07:002008-10-23T08:12:41.735-07:00PCCAN’s 5th ANNIVERSARY MEETING<div align="left">Sunday, November 9, 2008</div><div align="left">2:00—4:00 pm<br />At Penn State <a href="http://www.blogger.com/www.hmc.psu.edu/maps/"><span style="color:#ffcc00;">Hershey Medical Center</span></a></div><div align="left">Conference Room A (at the rear of the cafeteria dining room) </div><div align="left"><a href="http://www.hmc.psu.edu/maps/"></a></div><div align="left"></div><div align="left"><em><br />Please join us for the video presentation*:</em></div><strong>Understanding Carcinoid: </strong><br /><div align="left"><strong>The Disease, Diagnosis, Management, And Biochemical Control </strong></div><div align="left"><em>with Nancy M. Gardner, PhD, ARNP-BC</em></div><div align="left"><br /><em><span style="color:#ffcc00;">Join us following the meeting for refreshments and help celebrate our first five years of supporting, educating &amp; advocating.<br /></span></em><br /><span style="color:#cc0000;">Please RSVP</span><span style="color:#000000;"> with Teresa by Nov. 4th<br /></span>Email: <a href="mailto:CarcinoidSupport@juno.com"><span style="color:#ffcc00;">CarcinoidSupport@juno.com</span></a><br />Phone: 717-.576.5095<br />More information can be found at our website: <a href="http://www.pccan.net/">www.PCCAN.net</a></div><div align="right"><br /><span style="font-size:78%;"><em>*courtesy of the Carcinoid Cancer Awareness Network</em></span></div><div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-1106130566485865979?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-82524787740786563462008-10-20T19:38:00.000-07:002008-10-20T19:42:12.054-07:00Nov. 9, PCCAN MeetingReserve Sunday, November 9th for the next PCCAN meeting! It will be held from 2 - 4:00 at Hershey Medical Center in conference room A which is at the rear of the cafeteria. The agenda will soon be posted, meanwhile mark your calendar.<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-8252478774078656346?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-59854853045175109202008-10-20T18:40:00.000-07:002008-10-23T08:17:54.193-07:00The Zebra Walk<a href="http://3.bp.blogspot.com/_79XJuDF_iH4/SQCVT4a1ztI/AAAAAAAAABI/60BDXV1ZrSQ/s1600-h/P1010356.JPG"><img id="BLOGGER_PHOTO_ID_5260368533563756242" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 226px; CURSOR: hand; HEIGHT: 193px" alt="" src="http://3.bp.blogspot.com/_79XJuDF_iH4/SQCVT4a1ztI/AAAAAAAAABI/60BDXV1ZrSQ/s320/P1010356.JPG" border="0" /></a> The Zebra Walk on October 4th at the Philadelphia Zoo in memory of Deb Kilmartin was a memorable event. Participants wore t-shirts donated by the Carcinoid Cancer Foundation and seeing Deb's family surrounded by a crowd in zebra t-shirts was inspiring. We were able to see Suzi, the zebra adopted by the <a href="http://www.phillycarcinoid.org/Home_Page.html">DVCC</a>, and take a picture with her, though she wasn't very cooperative. Check out <a href="http://www.phillycarcinoid.org/Deb_s_Zebra_Walk.php">photos</a> from the event.<br /><br />Thanks to Suzi Garber for all her time, expense, and effort in organizing this spectacular event!<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-5985485304517510920?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-47588764025937679892008-08-14T07:15:00.000-07:002008-08-14T07:19:37.814-07:00PCCAN.net has technical difficultiesYou may have noticed that the PCCAN website is sorely outdated. We are having some technical difficulties which we hope to be resolved shortly.<br /><br />Any PCCAN or carcinoid related questions can be directed to<br />Teresa at 717-576-5095 or <a href="mailto:CarcinoidSupport@juno.com">CarcinoidSupport@juno.com</a>.<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-4758876402593767989?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-26489441839673861232008-07-10T19:43:00.000-07:002008-07-10T19:46:26.687-07:00PCCAN's Annual Picnic Resumes!We would be delighted if you would join us on Saturday, July 19th from 4 to 7pm as PCCAN’s annual picnic resumes!<br /> <br />Grilled chicken and beverages will be provided. You may bring a dish to share if you wish.<br /><br />The picnic is the Linglestown/Harrisburg area and will be moved indoors if needed due to rain or heat.<br /><br />Please contact Teresa to RSVP and for directions.<br /><a href="http://www.%20pccan.net/">www. PCCAN.net</a><br /><a href="mailto:CarcinoidSupport@juno.com">CarcinoidSupport@juno.com</a><br />717-576-5095<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-2648944183967386123?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-63815683436702421652008-04-27T17:37:00.000-07:002008-04-27T17:55:48.257-07:00Can’t say it enough – THANK YOU!The conference in Harrisburg was a great success due to the help of many people and I’d like to acknowledge a few here:<br /><br />Donna Gibson for being Kevin's inspiration.<br /><br />The 101 participants; many who traveled far distances<br /><br />Those who helped at the event: Kevin Gibson, the handsome Ed Lanza, Jeff &amp; Tresa Lohr, Cindy Walker, Jim Weiveris<br /><br />The speakers: Dr. Harold Harvey, Judy Lyter, Dr. Mathew Kulke, Dr. Tom O’Dorisio, Dr. James Pingpank<br /><br />The sponsors and their representatives: InterScience Institute – Mia, Delcath Systems – Jason, Novartis Pharmaceuticals – Jeff<br /><br />Carcinoid Cancer Foundation for providing DVD’s of the Norfolk Conference.<br /><br />Kevin Gibson, David Botera &amp; Ric Medina who raised funds for the event through Hope in Handball.<br /><br />And last but surely not least, <strong>Bob &amp; Maryann Wahmann of CCAN</strong> whose roles &amp; duties included: sponsor, organizer, planner, printer, problem solver, travel agent, scheduler, meal planner, registrant, purchasing agent, contract negotiator, program designer, goodies collector, bag stuffer, grant writer, grant re-writer… the list goes on and on!<br /><br /><em>From all of us who attended and benefited from the event we send a sincere thank you. </em><br /><em></em><br /><em>Teresa</em><div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-6381568343670242165?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-49221277767901631252008-04-13T20:45:00.000-07:002008-04-13T21:03:50.216-07:00Sat. April, 26, Harrisburg Carcinoid Conference: Directions & More<em>Haven't registered yet? There's still a few spots open so don't hesitate a second longer. Need a little convincing? Did you know that Harrisburg is an easy 2 hr. drive from Baltimore, Washington, D.C., and Philadelphia? From NYC you can make it in 3 hours (or 2 1/2 if you drive like my crazy brother-in-law). If you live in Pittsburgh or Syracuse, NY you can make it to Harrisburg in 4 hours. Don't like to drive? Bus and train information is below and there's always the HIA (Harrisburg International Airport).</em><br /><br /><br /><strong>PARKING INFORMATION, DIRECTIONS &amp; TRAVEL OPTIONS</strong><br />to Harrisburg for the Saturday, April 26th conference hosted by <a href="http://carcinoidawareness.org/">CCAN</a> and <a href="http://www.pccan.net/">PCCAN</a>.<br /><br /><strong>PARKING</strong><br />Self-parking is available in the Walnut Street Garage and valet parking is provided by the hotel at the cost of $20. The cost of self-parking is included in the registration fee. Bring your parking ticket with you to be validated at the conference. Validation is not offered for valet parking. Limited metered street parking, with a limit of two to four hours, is available on Walnut, 4th, and 3rd Streets.<br /><br /><strong>DIRECTIONS</strong>: to the Walnut Street/Hilton Harrisburg Parking Garage<br /><strong><br />From </strong><a name="Phila"></a><strong>Philadelphia (PA Turnpike I76):</strong> Take Exit 247 (Harrisburg East). At toll plaza, continue straight on I283 North. Follow I283 North to I83 South. Take exit for I83 South. Continue on I83 to 2nd Street Exit (Exit 43 - Old Exit 23). Go down ramp to red light. Continue through red light onto 2nd Street. Continues at <strong>*</strong>.<br /><strong><br />From </strong><a name="Pgh"></a><strong>Pittsburgh (PA Turnpike I76):</strong> Take Exit 242 (Harrisburg West). At toll plaza, continue onto I83 North. Take I83 North to 2nd Street Exit (Exit 43 - Old Exit 23). Take exit ramp to red light. Continue through red light onto 2nd Street. Continues at<strong> *.</strong><br /><strong><br />From Interstate 83 South (York/Baltimore/Washington DC):</strong> Take I83 North to 2nd Street Exit (Exit 43-Old Exit 23). Take exit ramp to red light. Continue through red light onto 2nd Street.<strong> *</strong>Follow 2nd Street to Market Street. Turn right immediately before the Hilton Hotel onto Market Street. After you turn onto Market Street, move into the far left lane. Make a left into the alley directly behind the Hilton. An entrance to the Walnut Street garage is on the left just prior to reaching Walnut Street. Take the elevator to the SA level (Strawberry Square Arcade). Exit the elevator and proceed straight through the double doors. Turn right and proceed to the Hilton.<br /><strong><br />From I81 (</strong><a name="Scranton"></a><strong>Scranton/Allentown/Carlisle):</strong> Take I-81 to Exit 66 - Front Street South (Old Exit 22). Proceed for 4 miles south on Front Street and turn left onto Market Street. Continues at &shy;***.<br /><strong><br />From </strong><a name="Wmsport"></a><strong>Routes11/15 and 322/22 (Williamsport/Sunbury/State College):</strong> If traveling on Routes 11-15, at intersection of 11-15 and Interstate Route 81, take 81 North across Susquehanna River. (If traveling on Routes 322-22, exit onto Interstate Route 81 south.) Take I-81 to Exit 66 - Front Street South (Old Exit 22). &shy;Proceed for 4 miles and turn left on to Market Street. ***Continue on Market moving to the far left lane. You will pass the Hilton Hotel on the corner of 2nd St. and Market Street. Make a left into the alley directly behind the Hilton. An entrance to the Walnut Street garage is on the left just prior to reaching Walnut Street.<br /><br /><a href="http://www.amtrak.com/">AMTRAK</a> provides convenient daily service from Lancaster, Paoli, and Philadelphia via its <a href="http://www.amtrak.com/trains/keystone.htm">Keystone Service</a>. The Harrisburg train station is three blocks from the Strawberry Square Office<br /><br /><a href="http://www.greyhound.com/">GREYHOUND</a> Trailways and several other private bus lines provide daily service from many smaller communities not serviced by Amtrak as well as the larger communities serviced by Amtrak. The Harrisburg bus station is three blocks from the Strawberry Square Office.<br /><br /><a href="http://www.flyhia.com/">HARRISBURG INTERNATIONAL AIRPORT</a> Drive time to the Hilton is 30 min. Taxi Service is approximately $15. Call the hotel (717-233-6000) for courtesy bus information.<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-4922127776790163125?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-31377664616640396402008-02-28T05:09:00.000-08:002008-02-28T05:23:10.287-08:00Conference Countdown - 8 weeks!The Carciniod/NET conference in Harrisburg, PA is only 2 months away!<br /><br />Please register early and if you are staying overnight reserve your room ASAP. We've already had to add rooms to the block we previously reserved and the hotel often is fully booked. Information about the conference is below and details and the agenda can be found at <a href="http://www.pccan.net;/" target="_blank">http://www.pccan.net;/</a> registration is at <a href="http://www.carcinoidawareness.org/" target="_blank">http://www.carcinoidawareness.org/</a>.<br /><br /><strong>April 26, Saturday, 9:00 am - 4:00 pm, Harrisburg, PA<br /></strong>DIAGNOSIS AND TREATMENT OF CARCINOID CANCER &amp; NEUROENDOCRINE TUMORS: WHAT WE NEED TO KNOW,<br />Presented by the Carcinoid Cancer Awareness Network and PCCAN.<br /><br />Featured speakers are carcinoid specialists <strong>Matthew Kulke, MD</strong> of Dana-Farber Cancer Institute, Boston, MA and <strong>Thomas O'Dorisio, MD</strong> of Iowa University Health Care, Iowa City; Judy Lyter; RN, MS, LPS a former oncology nurse, with Dr. Harold Harvey of Penn State Hershey Medical Center, Hershey, PA moderating.<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-3137766461664039640?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-78132467379663241432008-02-28T05:02:00.000-08:002008-02-28T05:08:23.398-08:00Coffee Any One?<p>This Sunday: March 2nd, 1:00 pm - 4:00** pm, meet us at St. Thomas Roasters in Linglestown (Harrisburg, PA area - near Exit 72 of Rt. 81). St. Thomas Roasters offers the opportunity to gather in a relaxed setting with others who share the challenge of living with Carcinoid Cancer. </p><p>Visit www.StThomasRoasters.com for directions or call 717.526.4171 and note that this is a different location from our prior meetings.<br /><br />Please RSVP with PCCAN (<a onclick="top.checkNewBrowser('26?To=CarcinoidSupport@juno.com&amp;count=1204203682')" href="mailto:CarcinoidSupport@juno.com">CarcinoidSupport@juno.com</a>) so the cafe can adequately staff for our visit.<br /><br />(**Please note that we are meeting from 1 - 4, not earlier as some flyers incorrectly stated.) </p><div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-7813246737966324143?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-55487964411671443702008-01-03T19:04:00.000-08:002008-01-03T19:13:24.903-08:002008 WINTER & SPRING EVENTS CALENDARThere is a lot of activity within the carcinoid community this year. For a "old timer" like me, having been diagnosed 10 years ago when there were only two carcinoid websites (Sunny Susan's and the Carcinoid Cancer Foundation), this is phenomenal! I hope you take advantage of some of these opportunities and remember that you are not alone!<br />Happy New Year!<br />Teresa<br /><br /><strong>2008 Winter &amp; Spring Calendar<br />PENNSYLVANIA AND REGIONAL EVENTS<br /></strong><br /><strong>Sunday, January 20th, 2:00pm – 4:00</strong><strong>pm<br /><a href="http://www.phillycarcinoid.org/">The Delaware Valley Carcinoid &amp; NET Connection</a> Kick-off, Philadelphia, </strong><strong>PA</strong><br />The first PCCAN gathering of 2008 will be at this exciting event as we join with and support the carcinoid/NET communities in Philadelphia and the surrounding regions. Nancy Gardner, the guest speaker, will be of interest to all of us. Be sure to see the attachments and visit the new Philly web site for details- <a href="http://www.phillycarcinoid.org/">http://www.phillycarcinoid.org/</a> or call Suzi Garber at 610-779-2901.<br /><br /><strong>Sunday, March 2nd, 1:00pm to 4:00</strong><strong>pm<br />A Conversation &amp; Coffee, Harrisburg, PA<br /></strong>Meet us at <a href="http://www.stthomasroasters.com/">St. Thomas Roasters </a>in West Hanover Township near Harrisburg. St. Thomas Roasters offers cold and warm beverages, a light menu and it's a great opportunity to gather in a relaxed setting with members of the Carcinoid/NET Community and to meet others who share the challenge of living with Carcinoid Cancer. Visit <a href="http://www.stthomasroasters.com/">http://www.stthomasroasters.com/</a> for directions or call 717-526-4171.<br /><br /><strong>Saturday, March 15th, 10:00am to 12:30 pm<br />The Familial Aspects of Carcinoid, Merrifield, VA</strong><br /><a href="http://www.blogger.com/www.members.aol.com/cacsva">Capital Area Carcinoid Survivors</a> (CACS) sponsor Dr. Stephen Wank, National Institute of Health. Contact CACS for more information: <a href="http://www.members.aol.com/cacsva">www.members.aol.com/cacsva</a> .<br /><strong></strong><br /><strong>Sunday, April 13th, 1:00 to 5:30 pm<br />The CCF 11th Annual Carcinoid/NET's Conference, New York</strong><br />This event is for patients, caretakers and medical professionals. The topic is "Progress in Research and Treatment” with guest speakers Richard R.P. Warner M.D., Herbert Chen, M.D., Andrew S. Kennedy, M.D., and includes networking and survivor stories. Call 1-888-722-3132 to register or register on-line at <a href="http://www.carcinoid.org/">http://www.carcinoid.org/</a> .<br /><br /><strong>Saturday, April 26, 10:00am to 4:00pm<br />Carcinoid Cancer/NET Conference, Hershey, PA</strong><br />This conference will feature Dr. Eugene Woltering, Dr. Matthew Kulke, and Dr. Harold Harvey. The conference is tentatively scheduled from 10 am – 4 pm. Please visit <a href="http://www.blogger.com/www.PCCAN.net">PCCAN </a>at www.PCCAN.net for details regarding the agenda, time and location or call Teresa with at 717-576-5095.<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-5548796441167144370?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-24359329842902543152007-10-16T21:44:00.000-07:002007-10-16T21:58:50.985-07:00PRESS RELEASEPA Carcinoid Cancer Advocacy Network<br />Teresa Lanza<br />Harrisburg, PA<br />717.567.5095<br />carcinoidsupport@juno.com<br /><br />United States Handball Assoc.<br />David Botero<br />Harrisburg, PA<br />717.798.7128<br />dbotero@andculture.com<br /><br />FOR IMMEDIATE RELEASE<br />16 October 2007<br /><br />“Hope in Handball, Carcinoid Cancer, andCulture” Event Scheduled for Guinness World Record™ Attempt, Raise Awareness for Local Carcinoid Cancer Organization<br /><br /><br />Harrisburg, PA – The Harrisburg Mall, located on I-83 &amp; Paxton Street, will host a ground-breaking event, by which a team of handball players will attempt to set a Guinness World Record™ for the longest handball match. The 24-hour handball marathon exhibition will begin on Friday, October 19th at 5:30 PM and conclude on Saturday the 20th. The event’s primary objective is to create awareness of carcinoid cancer and related neuroendocrine cancers, and proceeds will be used for carcinoid cancer education and awareness in the Midstate. The players are collaborating with Teresa Lanza of PCCAN, the PA Carcinoid Cancer Advocacy Network, which is an organization that seeks to support and educate patients &amp; families in PA.<br /><br />“Hope in Handball, Carcinoid Cancer, andCulture” is being held in memory of Donna Gibson, a carcinoid patient whose untimely passing inspired her family and friends to raise funds furthering Carcinoid Cancer education and awareness efforts in Pennsylvania. These funds will come in the forms of the benevolent financial sponsorships that were made possible by the corporate citizenship of local and national partners, including Brinjac Engineering, Commerce Bank, andCulture, and Comcast.<br /><br />Passersby and spectators will be encouraged to make a tax-deductible donation; and for every $5-dollars donated, a person will be eligible to take part in the “Hope” raffle. Sponsors, partners, and friends have collaborated to donate a number of exciting gift items including an authentically-signed Stephon Marbury (from The New York Knicks) jersey, a signed Tiger Woods bobblehead collector series item, gift cards to local restaurants, and many other wonderful gift packages.<br /><br />This is a sanctioned event, and will be monitored by accredited witnesses; thus adhering to Guinness World Record ™ guidelines and regulations. Play is continuous, and the players will be provided with allotted 5-minute breaks to be used for resting, nourishment, and general restroom use. Three players will be involved throughout this perpetual endeavor. From Harrisburg, Kevin Gibson, a Computer Specialist for the PA House of Representatives and an ordained minister, is playing in memory of his wife, Donna. David Botero, from Hershey, is a Business Development Manager at andCulture, an integrated marketing communications agency in downtown Harrisburg. And, Ricardo Medina, originally from Reading, is a student at Temple University in Philadelphia. Each has a profound respect and commitment to the game, and advocate its growth and development in Central PA.<br /><br />Together, PCCAN and the players have partnered to give Carcinoid Cancer patients a voice, and are using the sport of handball as the messaging vehicle. They are also using this opportunity to continue to promote handball in a friendly, fun, healthy, and innovative manner. The Guinness World Record™ attempt will help elevate this platform, as well as generate leverage with The Harrisburg Mall’s significant traffic.<br /><br />To learn more information about Carcinoid Cancer, the dynamics behind Handball; or to learn more about the event’s sponsors, raffle items, and agenda, please visit <a href="http://www.hopeinhandball.org/">http://www.hopeinhandball.org/</a><div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-2435932984290254315?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-27287164356320162982007-09-22T20:12:00.000-07:002007-09-22T20:24:46.020-07:00NEW: Southwestern PA Support Group!A support group is forming in southwestern Pennsylvania!<br />Please contact Michael if you are interested in participating.<br />You can reach him through the PCCAN phone number ( 717-576-5095) or via email at <a href="mailto:michael@isletcellcancer.com">michael@isletcellcancer.com</a>.<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-2728716435632016298?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-89828302143857069742007-09-22T20:10:00.000-07:002007-09-22T20:28:28.488-07:00NEW: LANCASTER SUPPORT GROUP!The first Lancaster Carcinoid/NET Support Group meeting will be held on <em><strong>Sunday, Nov. 16, 2007 from 2:00 to 4:00</strong> <strong>pm</strong></em> at the Church of the Apostles; 1850 Marietta Ave., Lancaster.<br /><br />If you have questions or are interested in assisting with the group please call Susan at 717-898-1732 or 717-824-1572 or email her at <a href="mailto:susan288@verizon.net">susan288@verizon.net</a>.<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-8982830214385706974?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-84187100204391979012007-09-22T20:08:00.000-07:002007-09-22T20:09:35.661-07:00SAVE THE DATEOn May 3rd, 2008, PCCAN will host a Carcinoid Cancer/NET conference. Moderated by Dr. Harvey, our guest speakers are Dr. Eugene Woltering and Dr. David Kulke. This event is for patients and physicians!<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-8418710020439197901?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-66049813976199932652007-09-22T19:57:00.000-07:002007-09-22T20:08:04.020-07:00Q & A with Dr. Harvey - Nov. 4, 2007<strong>QUESTION &amp; ANSWER Session with Dr. Harold Harvey</strong><br /><strong><br />DATE &amp; TIME:</strong><br />Sunday, November 4th, 2007<br />2:00—4:00pm<br /><br /><strong>LOCATION:</strong><br /><a href="http://www.hmc.psu.edu/maps/">Hershey Medical Center, Hershey, PA</a><span style="color:#cc0000;">*<br /></span>Cafeteria Dining Room A<br /><br /><strong>SPEAKER:<br /></strong>Harold Harvey, M.D.<br />Professor of Medicine<br />Division of Hematology/Oncology<br />Penn State Hershey Medical Center<br /><em><br />Please RSVP</em> with PCCAN so we can plan for<br />adequate seating.<br /><br /><em><span style="color:#cc0000;">*Traffic patterns and parking areas have changed due to ongoing construction. Please allow additional travel time.</span></em><div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-6604981397619993265?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-24353179615986324502007-09-22T19:45:00.000-07:002007-09-22T19:57:02.444-07:00HOPE IN HANDBALL: Oct 19-20, 2007 (FUNDRAISER)Show your stripes and come to the <a href="http://shopharrisburgmall.com/directions/directions.html">Harrisburg Mall </a>(located on I-83 &amp; Paxton St.) and support the <span style="font-family:georgia;">Hope in Handball, Cancer, andCulture</span> benefit. This exhibition is a 24-hour handball marathon beginning <strong>Friday, Oct. 19th at 5:00 pm and ending October 20th</strong> as it raises awareness of Carcinoid Cancer and related neuroendocrine cancers and generates funds to support the educational endeavors of PCCAN.<br /><br />This event is being held in memory of Donna Gibson, a carcinoid patient whose premature death in June inspired her family and friends to raise funds furthering Carcinoid Cancer education and awareness efforts in Pennsylvania.<br /><br /><div align="left">Advocates will attempt to set a Guinness World Record ™, and there will be plenty of news coverage and observers. PCCAN will have a booth at this event and will need members to attend the booth, hand-out information and awareness merchandise to passers-by and chat with people who stop by. This is a great opportunity for some multi-generational bonding for those with children or grandchildren and PCCAN members are encouraged to invite friends and family to participate. There is a place for everyone at this ‘round-the-clock event!</div><div align="left"></div><div align="left"></div><div align="left"><br />Please contact PCCAN with any questions and join me for some fun while we create carcinoid awareness and raise funds for carcinoid education in the midstate.<br /></div><em></em><div align="right"><em>Teresa</em> </div><div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-2435317961598632450?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-90046115479069785532007-07-21T04:48:00.000-07:002007-07-21T09:06:18.868-07:00Conversation & Coffee: Sun, Aug 5thMeet us from 1 - 4:00 pm at the <a href="http://www.stthomasroasters.com/">St. Thomas Roasters </a>in West Hanover Township near Harrisburg, PA for the next PCCAN meeting. St. Thomas Roasters offers cold and warm beverages, a light menu, and indoor and outdoor seating. It's a great opportunity to gather in a relaxed setting with members of the Carcinoid/NET Cancer Community and to meet others who share the challenge of living with Carcinoid Cancer.<br /><br />I hope you will join us for this event which is in place of our annual picnic due to my recent surgery.<br /><br />Please RSVP for this event so that St. Thomas Roasters can adequately prepare for us.<br /><br /><em>Teresa</em><div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-9004611547906978553?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-45738434742662213102007-05-05T19:10:00.000-07:002007-05-05T19:22:08.671-07:00REVISED AGENDA FOR MAY 6THRegrettably, Dr. Harvey will have to postpone his meeting with us until a later date. In his absence we will view and discuss a presentation by carcinoid specialists Dr. Richard Warner. This presentation is a thorough overview of the disease, including diagnostic techniques, symptoms, monitoring recommendations, treatment options and much more. Same time, same place - see you there!<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-4573843474266221310?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-14576556335994772392007-04-21T21:43:00.000-07:002007-04-21T22:13:45.607-07:00Dr. Harvey to Speak on May 6th.<em>What every patient should know about managing and monitoring carcinoid cancer and related neuroendocrine cancers</em> - Dr. Harold Harvey, Penn State Hershey Medical Center.<br /><br /><blockquote><p>Join us on Sunday, May 6th at 2:00 in cafeteria dining room A at Hershey Medical Center for a time of learning and sharing. Dr. Harold Harvey of Hershey Medical Center will be our featured speaker. Dr. Harvey's relaxed manner of relating to and interacting with his audience and ability to clearly explain complex issues has lead to repeated requests for his return to PCCAN. The discussion will focus on the basics of managing and monitoring carcinoid cancer. This is a valuable program for all carcinoid patients, especially those newly diagnosed, and provides an opportunity for patients to ask questions of and receive answers from a carcinoid knowledgeable physician.<br /><br />To <span style="color:#ff0000;"><strong>RSVP </strong></span>and for additional information contact Teresa at <a href="mailto:CarcinoidSupport@juno.com">CarcinoidSupport@juno.com</a> or call 717-576-5095.<br /></p></blockquote><div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-1457655633599477239?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-1170687050062808082007-02-05T06:48:00.000-08:002007-02-05T12:03:37.196-08:00CONVERSATION & COFFEESee information about our new event at <a href="http://pccan.net/index_files/Page756.htm">PCCAN.net</a>!<br /><br />Interested in a CONVERSATION &amp; COFFEE in your neck of the woods? It's a piece of cake! Contact PCCAN and we'll get you started.<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-117068705006280808?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-1169439283296363602007-01-21T20:06:00.000-08:002007-01-21T20:59:30.060-08:00Attorney to Speak at Feb. 4th MeetingMitch Berger, an attorney in the Washington D.C. area, a carcinoid patient, and an active member of the <a href="http://hometown.aol.com/cacsva/index.htm">Capital Area Carcinoid Survivors </a>is our featured speaker at the Feb. 4th PCCAN meeting.<br /><br />Mitch will share his personal journey with carcinoid and educate us about Social Security Disability and issues specific to Carcinoid Cancer patients. He will also update us on the status of legislative efforts to impact carcinoid research and public awareness. You are encouraged to bring specific questions related to S.S. Disability and can reference <a href="http://www.SocialSecurity.gov">www.SocialSecurity.gov</a> for forms and documents.<br /><br /><strong>Please RSVP</strong> at <a href="mailto:CarcinoidSupport@juno.com">CarcinoidSupport@juno.com</a> or 717-576-5095. In case of inclement weather call PCCAN or check this site for cancellation notice.<br /><br />The meeting is scheduled from 2 - 4 (giving most of us enough time to get home for the game) in dining room A/B which is to the rear of the cafeteria in the main building of Hershey Medical Center. For directions see <a href="http://pccan.net">PCCAN.net</a> or contact PCCAN.<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-116943928329636360?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0tag:blogger.com,1999:blog-11303228.post-1159796542890473622006-10-02T06:41:00.000-07:002006-10-30T19:49:22.486-08:003rd Anniversary Celebration - Nov. 12, 2006The Pennsylvania Carcinoid Cancer Advocacy Network’s 3rd Anniversary Celebration will be held on Sunday, November 12, 2006, 2:00 – 4:00 pm at Penn State Hershey Medical Center in Dining Room C.<br /><br /><strong>Empowering the Carcinoid Cancer Patient & Navigating the Medical Maze</strong>:<br />Jean Kozachuk, RN, BSN, OCN, Clinical Head Nurse at Penn State Hershey Medical Cancer Center, will provide insight into how to become your own advocate, how to maximize time with your physicians, and other tips to help you navigate the medical system.<br /><br />The agenda also includes: PCCAN- past and future, highlights from the annual national carcinoid cancer conference, a special award presentation, and time for networking and refreshments.<br /><br />Please RSVP for this meeting at <a href="mailto:CarcinoidSupport@juno.com">CarcinoidSupport@juno.com</a> or 717-576-5095.<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/11303228-115979654289047362?l=carcinoidresources.blogspot.com'/></div>Teresa Lanzahttp://www.blogger.com/profile/07975567130568769758tjl567@juno.com0